Recent content by csgam

Some friends asked me to share this ALS A-Z Website Link Index... ALS Everyday Living: ALS Helpful Links A-Z

Aaron, Have the same Dexpra - Pacer issue as you. E-mail me at [email protected] and let' s talk.

Merfeld Family Foundation college scholarship application deadline is January 6, 2012 at Ventura County Community Foundation. Four (4) $2,500 awards will be made for Fall Term of 2012. Current college enrollees and high school seniors planning on attending college are eligible. Must have a...

I have also been in the Dex trial for four months and am able to get the Pacer implanted as early as next month if I am willing to go off the trial. Theory is Dex can extend life by 39% if proven correct but 50% chance I will be on the Placebo for up to 14 more months before switching to open...

Have a new blog post if anyone is interested. It's extremely difficult as a patient to watch the limited progress made against ALS by the medical community. Almost 150 years since the disease was identified and only one lousy, very expensive medication (Riluzole) that may extend life only 60-90...

Did some heavy research on this. One Man's Opinion on the New FDA Approved Diaphragm Pacing System - Timing Challenges Abound Many PALS were excited to hear about the NeuRx Diaphragm Pacing System by Synapse that was very recently FDA approved for ALS patients. The FDA granted a Humanitarian...

Driving with a Disability and Buying a Wheelchair Van - Trials and Tribulations Had an interesting experience purchasing a wheelchair van a few months ago and thought I would share my experiences. It had become extremely difficult for me to continue to drive on my own. I still had good use of...

Wheelchair Van Buying Advice Check out my latest blog post at http://alseverydayliving.blogspot.com/2011/10/driving-with-disabilty-and-buying.html.