Recent content by crystal1

Well put, Sonne. Happy Christmas to you and all the best for 2021.

A huge thank you to all of you who reached out to me with terrific advice. You are all very brave and my prayers are with you. Sonne, I am lost for words at your courage and I am very humbled too. My problems are tiny in comparison with what you have endured and are continuing to endure. Take...

Thank you! I haven't figured out how to thank each one of you individually on this forum. I find it a bit convoluted.

Thank you everybody for your kind words and advice. You were all awesome! I have taken note of things that were said and I will take action, although I will have to tread carefully with my husband's temper being what it is. God Bless you all and take care!

Thank you for your kind response. My husband refuses to use equipment apart from a walker, hospital bed and a wheelchair, and these are in moderation. Most of the time he leans on me bodily to transition him and when I cannot support him fully he loses his temper. He also downplays his condition...

Could somebody please offer me any advice about my situation. I am a spousal caregiver for my husband who is in the late stages of ALS (three and a half years with this condition). We do have a caregiver, who is wonderful, but recently I am finding that I am not coping at all. I am getting...

Myself and the ALS specialist agree that my husband has had ALS for a long time, way before he was diagnosed. He was showing symptoms about 20 years ago: always dropping things etc. His personality has also gone through changes. His memory started deteriorating years ago too and he became more...

Thank you, everyone who responded. Not sure how to reply to individuals. Laurie, thank you, yes, we do have the equipment we need although I am a tad scared of the Hoyer lift! My heart goes out to the gentleman whose wife has been suffering for the past six years. Take care of yourself.

Hello, everyone, This is my first time using the forum. My husband was diagnosed with ALS three years ago. The specialists have given him a time frame of 3 to four years so he is in the late stages. Looking forward to communicating with others who are in the same boat so we can offer support...

I totally empathize with your situation. My husband of 29 years has been abusive to me most of our married life. He was diagnosed three years ago with ALS and although he is no longer able to physically berate and abuse me, he can still use his mouth. We have gone through 4 caregivers in 8...