crlester

Hello Crlsester,

I read your post on another 'thread' as they call them here, and wanted to say hi. I am so sorry to hear your news of course; but glad to see you here. This forum is a good, good place to be. My diagnosis is no longer confirmed, but 18 months or so ago it was diagnosed as MND and I also had to go through the process of telling my 6 children, a day I wont forget. Here we are, so many months later and I have just packed the last of them of in their care after a wonderful weekend together on the coast - our life has continued to be rich indeed.

Warm regards,
Roderick.

Sorry about the diagnosis. My husband was diagnosed with bulbar in October. I still have not wrapped my head around it. Going to have to soon, his speech is getting worser fast.

Dear CR, I'm so sorry you too have this cruel disease. My mom just received her diagnosis on Thursday having developed difficulty speaking and dry mouth symptoms back around May or June. When her speech started getting worse and she began having trouble swallowing, around October, she finally decided to seek another opinion earlier this month. The first neurologist told her it was stress-related, the second said it must have been a stroke. Finally, the third gave her the bad news.

Although not in the medical field, I had been doing some research since the first symptoms appeared and was suprised. In fact, I even sent the ALS website to my father, just so he would consider the possibility. He's taking this really hard. He says his life is over.

I'm available for chat, if you need to talk.