Recent content by cris

yes..ladies this is a sad part of ALS...... The most frustatrating part is that we love them sooo much and have to watch! There just is simply nothing we can do but help them w/ each stage...:( We had many falls crying, and anger..... The worst and sadly funniest was the night I came home...

Stacy you will find all the hope and answers you can hope foe w/ this horrible disease!...My prayers are with you and your mom...family tooo! God Bless! cris

Kay Marie Bowers is on FB very often...so am I we have found that we get virusess when on here..:( I miss you all so much! You are all in my prayers everyday! God Bless! cris

Kari hank you so much for going above and beyond the call for one of our beloved family here! We love you! You have such a strong heart. Please pass my love and prayers on to Iris for me. Glad to hear that she is still her perky self. We miss her so much here. I truly hope we will get to...

Kari.. You have done so much for us all and been so stong for your family too! God Bless You! I will keep you and your daughter in my prayers. I'm so sorry to hear that you are going through all of this! Thank you for all the news about Iris! Ampraying that she get computer hook up soon, I...

So glad to hear that things are going bettwer. My hubby wouldn't have let me stick him either.

cj, I so agree w/ the rest that have spoken before me... Get the three of you out of the house to some place w/ just you three. Some place where YOU can relax. I truly 'get' the family thing. If they can't get it just cut the time you spend with them down. Your son should be with you and...

Am sending MANY prayers and Hugs your way! This is outrageous! I would also send a copy of your letter to the local newspapers! The community should know what kind of terrible treatment their hospitals are giving. There is NO reasoin anyone, let alone someone with ALS should have to go that!

And this 'lovely one..."His caregiver seem capable of handling this...Is his wife here?" "sigh" Guess we have to let them know that we are actually BOTH spouse AND caregiver!

Not gonna be a lot of help, bt here goes. It 'could' be emotional liability. They seem to have emotional outburst that don;t match the subject at hand or is way more than the issue is warrented. It could be that he knows that he is 'loosing control of his body and has no idea how to handle...

CJ We were able to get my sister-in-law paid to come in and watch Earl everyday. The program was through the state med. If he qualifies for medicare he should qualify for state health insurance. The program in Illinois is called'Home Services'...DHS-DRS. I'm sure the your state will...

Honey...God is giving you the "steps" and He will continue to be there throug it all. Let the kids see you cry ( with-in reason). But don't let it ruin the time you have. Learn to laugh throught he tears, you will find they (laugh more, tears less) will come with time. My PALS Earl ended his...

Girls...you have come to the right place! We are all here in love and support. Most people just don't GET it. You have to live it see it everyday to understand. We also had issues with the kids and someone to take care of Earl. We found that having 2 or 3 people come in on a rotational...

amy.. We had the same issues, cold sweats and horrible bowel movements. Nothing worked for us, fiber, mira lax ect.... We had to give him a dose of milk of magnesia everyday. And a Tbsp of mineral oil everyday for 3 wks then we were able to back it down to a dose of milk of mag very other day...

Hey Hon..all is good here. Thank you so much for the love and support. We are all ok here. We miss him soooo much, but we are happy for him. He is in a much better place with no pain or sorrow. It's hard to feel bad about thatAll who have this and thier loved ones suffer such pain and...