Recent content by Cris R

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    Father Just Diagnosed With ALS

    Hi Rosales, I appreciate the advice and Im sorry about your brother and hope that while you feel you have the same symptoms, I hope that you come out with a clean bill of health. As for the testing, Im holding tight on that as of right now. My father has 4 brothers all within 10 years in age...
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    need some help

    I'm sorry, I did notice that after I posted but we do not have the ability to go back and edit. If you've had EMG's performed and they've come back fine, you are probably just dealing with some really high anxiety. You can only go by what the test results show. Unfortunately it sounds like...
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    need some help

    Hi help1127, That lump in the back of your throat is probably the overall anxiety taking hold. You stated that you have generalized anxiety and then you went ahead and googled "twitching" which resulted in a search for ALS. Then all of a sudden, you start feeling these other issues...
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    Father Had 3 Month Appointment Today.

    Yeah, I was a bit confused on that as well but I didn't dig into too much further with my parents. I'm not trying to be too selfish here with the whole thing. My dad is going through enough and if he tells me that the neuro is assured it's SALS, then I'm going with it at this point. I'm...
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    Father Had 3 Month Appointment Today.

    *Apologies to anyone who read this on another sub thread. I accidentally posted it the wrong place. I meant to post this here* Hi All, I had a previous post here about my father and my concerns with his SALS actually being FALS. I was given some really great advice but I just wanted to give...
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    Father Just Diagnosed With ALS

    Thank you for the advice. My parents are getting everything in line right now. They made me executor of their estate and my father is just now putting in for his retirement. Luckily for him he will have a really nice pension along with social security as well as his benefits. He's going to be...
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    Father Just Diagnosed With ALS

    You are right Barbie. I guess it's just the response that we automatically go through. Deep down I've read enough to understand that. It's just crazy because you want to be able to blame it on something other than just bad luck and a hiccup in my fathers genetic makeup. I've read a lot...
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    Father Just Diagnosed With ALS

    Thanks for the reply Nikki! I guess the first thing after diagnosis is trying to figure out "why?" My father also suffered a really nasty concussion in a car accident some years ago as well. I know that with all of the ALS cases in the NFL, that doctors have been trying to link major head...
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    Father Just Diagnosed With ALS

    Thanks Jerry! You're right......it sucks.
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    MND/ALS begun by Electrical Injury?

    Hi Spencer. I see that you are showing a ton of different symptoms and all of them could be related to so many things other than ALS. If you are not content with your current EMG results, then maybe you should get retested. A neurologist will look for specific things in the EMG to see if...
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    Father Just Diagnosed With ALS

    Hi Nikki, just one more question if you don't mind? I've seen some your other posts and you seem to be really "in tune" with this disease, especially the FALS side of it. My father has 4 brothers (none of which are affected by ALS), both of my grandparents are still alive and only recently...
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    Father Just Diagnosed With ALS

    Thank you for your support. I definitely understand the circumstance that my father faces as well as the circumstances myself and the rest of my family face going forward. My father and I actually talked tonight and he assured me that his neurosurgeon dismissed his case as familial ALS...
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    Father Just Diagnosed With ALS

    So just to understand this a bit better. The Neuros feel that in my fathers case that some environmental or viral issue is what probably caused a mutation? Which in turn ended up giving him ALS? Essentially they don't know, correct? But they are dismissing genetic/familiar ALS because we...
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    Father Just Diagnosed With ALS

    Hi all and Happy Thanksgiving! I have a question for some of the forum members here and was wondering what your opinions are on this matter. My father was just diagnosed with what neurologists consider to be "sporadic" ALS. My father has a long line of medical history on his side of the...
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