Recent content by COSister

  1. COSister

    sh** is getting real

    Another heart broken. Fly free Nona. Jessie. What an impact you’ve made. - Kay’s sister, Marcia
  2. COSister

    Grieving

    Annie, I too am so sorry to read about your loss and grief. Brings back emotions and feelings for me, as my sister died in August of 2019. It is a long journey we are left with when someone we love and depend upon so much dies. I too believe in an afterlife and Kay talked about her next...
  3. COSister

    3 years and........

    One year for me missing my sister Kay. Every day. Think I will feel the same after 3. Appreciate all of you sharing this same loss and grief. 💔💜
  4. COSister

    Karen Basin, bassoonist & rheumatologist

    I am so very sorry. Just now reading about Karen. Almost a year after my sister Kay left us. Another flying free forum friend. Broken hearts left here. Kay was always sad on days like these. Amazing bonds you all have made. 💔 She loved this group. Condolences to Wendyn. Gratitude for Karen’s...
  5. COSister

    #EveryCommunity map

    I just did Kay in Tucson. Should add me as past caregiver in CO?
  6. COSister

    #EveryCommunity map

    Just did it for Kay. Thanks 💔🌵💜
  7. COSister

    COVID-19 -- Avoid people. Get refills.

    Thinking of all the PALs and CALs. Missing Kay always. Don't know how we would’ve done it now. Stay strong. Just breathe. Part of Kay’s mantra. 💜💔
  8. COSister

    The frustration of conversing as a mute

    Communication issues were some of the most challenging. We had to resort to the alphabet "blue card" to spell things out when computer was not available. Kay learned to be an accomplished meditator and listener to survive I know. We made a game of who could figure out the right answer -...
  9. COSister

    The frustration of conversing as a mute

    This was one of the hardest losses for my sister, Kay. She loved to tell stories. Be part of lively conversations. She definitely turned to writing once she lost her voice. Certain family and friends were the best at pulling up a stool right next to her and being very patient as she typed out...
  10. COSister

    How are you? The Remix.

    It is the hardest question to answer. But nice that people ask. Not so good. Honest answer. Just will be missing my sister forever. But keeping busy. Exercise. Being outdoors. Seeing a hawk or an eagle. Think of Kay flying free. All help. Just over 3 months for us without her. Diagnosed 6...
  11. COSister

    5y since...

    Love this beautiful picture. Karl took some of Kay's ashes up the mountain where Kay told us she wanted to be. After almost 3 months, grief does wax and wane I find. Very fresh for all of us now. I'm going to Tucson tomorrow for a week, but not to take care of my sister. Checking in on this...
  12. COSister

    Precision Medicine Program?

    Kay and I both participated and were glad we did. Hard to watch her do those exercises and eventually she had to quit. We loved our trip to Boston though. Hoping we’re a small part of understanding this disease.
  13. COSister

    My heart is broken, but he is free

    So very sorry. Prayers for comfort for you and your family. Another soul flying free of this terrible disease.
  14. COSister

    Kay is flying free

    Thank you all. I agree. We are mourning and Kay is celebrating. She did get every bit of life that she could to the very last day. Celebrating her life in Tucson on Oct. 4. Then walking on Oct. 5. Some new white shirts that say Fly Free on the back. Still Shining Stars. Won’t ever stop...
  15. COSister

    Kay is flying free

    Yes -- Patrick and Kay had such a special bond. We are having a private family and caregiver gathering tomorrow. Thank you Laurie for posting this, too.
Back
Top