Recent content by Cornelia

I am sorry Peg, I never really thanked you for your kind words. In the middle of what you must be going through. I am sorry for venting about my cousin, it was misplaced:oops:Cornelia

Peg you have gone through so much. I hope that all will go well for your husband. I will tell you a story about my cousin, his name was Tobias, he was a quiet boy. A little shy, but once you got to know him he would open up and he was a wonderful kid. He wasn't handsome in a conventional way...

Jeff, thank you for your reply. I hope you do kick the **** out of ALS. Yes the more I think about that PA the madder I get, but it is too late, the seed was planted. I also think given all my symptoms it is more than just anxiety, although I am pretty anxious at this point. What I am...

Jeff I wanted to ask about your twitching. When this all started for you did you have an EMG done? What did the Dr.'s diagnose you with, or did they not give you one. You say you had localized twitching, so as I understand it the twitching took place in your hand, not your whole body. Please...

As far as I am aware weakness will precede twitching in most cases. Only rarely will twitching precede weakness. An EMG can be performened and it will show denerveration even before weakness and athrophy. So in my thinking if Boxer has been twitching for a year, had a clean EMG, no signs of...

Thank you Wright, you took the words right out of my mouth. I think 7 years is a long time to have twitching and cramping, before any other symptoms of ALS show up, since ALS is mainly an illness of weakness. As far as I have read, weakness will precede twitching, in the majority of cases, or...

My throat and tongue ache constantly, and this is since April/May of 07. All of it has been attributed to GERD. I feel like I have Tonsilitis, without the tonsils..... various things have helped, somewhat. No more Listerine, use Sensodyne toothpase (non whitening), sleeping with my head...

Hi Matt, why think the worst, don't do this to yourself. Als is not a common disease there are many other conditions that could be causing your symptoms. It seems to me like you are on the right track as to getting diagnosed. It will just take time. I am no Dr, but your progression of...

Oh Jen I am so sorry that your health has declined. As for useless, I doubt it. you may not be able to do all the physical things but you are here for them. I am sure it means the world to them. I do not know how old your girls are, but they dont have to be so old. You can let them brush...

Hi Rachel, sorry about your mom. That is such a hard loss. When I lost my mom I felt as if I had been set adrift. Love never dies. My thoughts are with you Cornelia

Tom, I have been having throat issues since April of 07, unfortunately when you google lump in throat, sore throat, it will show you all sorts of scary things. As my neuro told me yesterday...it usually starts with speech and swallowing problems due to weakness of your tongue. Hope this helps...

Tom I am not a doctor, but from what you described it does sound like an allergy/post nasal drip rather than als. You can have cronic post nasal drip and it will cause the symptoms you described. Does it ever get better, does allergy medication help? Cornelia

Also wanted to mention, my Dr told me that when you take an antidepressant, the first action is that it will reduce your depression, then it will start to work on anxiety. I am not depressed but I am experiencing alot of anxiety. So with the lexapro I really spiraled downwards it was awfull...

Hi Sammantha, I was just taken off lexapro because it actually made me more depressed, and I have just started on effexor, which I like a lot better. I also have experienced a tight feeling in my face and jaw that had started since I took lexapro, but I actually did not associate the two, but...

Hello Billyd, you have come to the right place for support and information. There are so many other things than ALS that could be causing your symptoms. So take a deep breath and try to relax, your EMG isnt so far away. Write down all the questions that you have for the Neuro, that way you...