Recent content by Cony

  1. C

    Trilogy discomfort in end stage

    My husband uses trilogy It is very important to find the correct setting where she is comfortable The same thing happened at first with him There are two modes PC and ST He felt comfortable using the ST mode Also, There are different types of mask You can use with the trilogy
  2. C

    Awful acid reflux with PEG tube

    My husband has had a peg tube for more than a year. I recommend blending. Eat fruits and lots of veggies, no artificial stuff, no gluten. Supplement with probiotics. He is fed with 60ml seringe. 3 meals 2 snacks.
  3. C

    Thoughts on Baclofen

    My husband Was prescribed Baclofen at night because of his exagerated spasms that occurred every night would not let him sleep. It was prescribed originally at 10 with the possibility of increasing as we considered but noticed that 15 was what worked better, along side of cvd/thc. Baclofen is...
  4. C

    Tobii Dynavox eye gaze communicator w/ stand

    Hello, do you still have the equipment? I replied thru message but didn´t hear from you I guess my proposal wasn´t what you expected. If it is still available please let me know how much you are asking to see if I can match your proposal. I am really in need of it. Thankyou
  5. C

    Hello, I am really in need. Please let me know your thoughts.

    Hello, I am really in need. Please let me know your thoughts.
  6. C

    We are really dependent and in need of Tobii and its communicator 5 for it is our only means of...

    We are really dependent and in need of Tobii and its communicator 5 for it is our only means of communication I would not know where we would be or if he would still be willing to keep fighting without it. Since my husbands ALS is advanced my monthly expenses are high and he does not receive...
  7. C

    my Pals is battling with sialorrhea

    After tracheostomy was performed on January 2020 my husband suffered collateral damage. What we were told to be something simple and fast became a nightmare. By that I mean that his bulbar muscles deteriorated. Before he underwent the operation he never choked, drank coffee and liquefied food...
  8. C

    Tobii Dynavox eye gaze communicator w/ stand

    Hello, I am sorry for your loss. My husband is in need of a tobii dynavox eye gaze for communication. He has ALS with upper and lower neurons already affected. He can not speak nor move, has PEG and tracheostomy. He has been loaned a Tobii I-12 since our insurance won't cover it and we don't...
Back
Top