Recent content by concernedman

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    Another neuro update

    Hi all, Just wanted to post a new update. I meet my neuro the other day and he did all the tests: reflexes, walking on heels and toes, look into my eyes with flashlight, holding my arms in front of body. Did no strenght tests at all and that is concerning since on of the symptom is my shoulder...
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    Need assurance and guidance

    Hi! Ok - I hear you. still have some questions though: Started with twitching in beginning of 2017, first big twitches but has changed character and is now fine twitches in the same areas as in arm, shoulder, hip, thighs and calves. ”Weakness” - not clinical according to two neuros. But in...
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    Hej! Hur mår du? Har du fått något svar i din utredning? Jag såg ett inlägg från dig om en Dr...

    Hej! Hur mår du? Har du fått något svar i din utredning? Jag såg ett inlägg från dig om en Dr. Andersen, hur får man tag på honom? Skulle du säga att det inte finns någon annan neurolog att gå till än han i Sverige? Jag har gjort 2 EMG och träffattvå neurologer i Stockholm som båda verkat...
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    Need assurance and guidance

    Hi ShiftKicker, hin Vincent and thank you for your replies! As I said earlier - sorry if Im offend anyone by pistong, its not my intention. However - Vincent youre right. I know i shouldnt lurking around here anymore but since nobody is able to find a reason to all the symptoms I end up back...
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    Need assurance and guidance

    Hi guys, its me again. Im sorry for writing here and I know I should not be lurking here since Im most likely not belong on this site. But I do have some answers I would like to ask you about my current status, and I really hope that Im not disturbing or offend anyone by doing this but my body...
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    Update - symptoms since Oct 2016

    Hi all! Just wanted to give you an update since I had my 2nd EMG today. The Doc Said that it wasnt ALS but something wrong with the shoulder muscle (he shall give me the final anseer next week), probably several pinched nerves that caused the damage due to the hard load on my body from...
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    Update - symptoms since Oct 2016

    Hi all, Thanks to all of you taking time and answering me, it really means a lot! I have one question regarding twitching; Ive been having ”isolated” twitches on several parts of my body since January 2017. Shoulders, elbows, thighs, knees and calves. This could be called widespread of...
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    Update - symptoms since Oct 2016

    Hi Laurie, I have no idea if it occurred before or after the EMG was done, but I have become aware of it after the EMG. I do not longer know what weakness in terms of ALS means since you always says its about muscles not working, and not "feeling" week. Of course I get fatiqued in my right arm...
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    Update - symptoms since Oct 2016

    Hi everyone, me again. My first thread was closed in the beginning of this year and I have really tried to let this go since many of you reassured me it didnt sound like ALS. As you know I had a quite big investigation done in 2017 with a bunch of bloodwork, MRI of brain and back, and one EMG...
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    Update; worrisome progression

    Hi Nicki and ShiftKicker, thanks for your very kind answers. Really appreciate it! So - what youre saying is I shouldn't be worried of ALS even my posted symptoms since the neuro didnt see any reason for concern and my EMG was normal (but not clean)? All the best, Peter
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    Update; worrisome progression

    Hi guys, Anyone else having any ideas? My Biggest concern is not the twithes, its the combination of it together with the arches, pain, tingling, numbess and shivering and only on my right side of the body - from toe to top. Thats is for me really strange! I do have a specific question about...
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    Update; worrisome progression

    Hi Nikki, Thanks for you reply. I would really like to post a picture of the difference in my fingers when holding a pen. I can write on word, then I have to "re-do" my grip to continue writing, its so hard to explain with words..But I cant move my pinkys much.. I do training, has done all my...
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    Update; worrisome progression

    Hi guys, first out I was trying to post in my origin thread but think its closed? If not please let me know. Anyway - I wanted to give you an update about my symptoms and how it have progressed, and hopefully some of you will reply with something that is reassuring because I can't let it go...
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    Very scared, symptoms getting worse. Please some advice

    Hi guys, Just wanted to give you all an update and hopefully calm some worried souls out there. As I mentioned before, Ive been worried sick for about 1 year, 100% sure I had ALS. I noticed EVERYTHING that my body was doing; twiching, burning feeling, tingling, buzzing etc and looked...
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    Hej! Jag ber så mycket om ursäkt för sent svar, jag har försökt hålla mig borta från forumet i...

    Hej! Jag ber så mycket om ursäkt för sent svar, jag har försökt hålla mig borta från forumet i väntan på att träffa neurolog och EMG-test. Nu har jag träffat 2 neurologer och gjort ett EMG-test på Huddinge sjukhus och dom alla säger att allt ser normalt ut och atet jag inte behöver oroa mig för...
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