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  • I'm sorry you are going through these symptoms. I have some of the same. I am interested in your tinnitus. Can you tell me about it? What does it sound like? Is it always present? Did it start at the same time as all other symptoms? I have it as well and think it is related.
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    Fasciculation1
    Hey there, sorry for the delay. Just saw your message. No, my tinnitus is intermittent—comes and goes a few times a day. I’m curious how your back mri came out? Mine dis not show an L5 nerve root impingement, so my atrophy and denervation in my RT tibialis anterior is still a mystery. I have my 4th EMG at UCSF next week and am terrified. My second EMG didn’t pick up what the third did.
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    Fasciculation1
    So, I’m hoping next weeks EMG doesn’t pick up on even more new stuff. In reading your posts, sounds like we’re having some very similar issues. Stanford ALS clinic tried telling me a lot of this is stress induced. UCSF Als clinic seems to be taking it a little more seriously. It’s all so stressful and confusing. The atrophy has moved up RT leg from calf into thigh. I’m praying for both of us.
    Concern3d
    GM. I read your post. I have similar symptoms Was interested in finding out more about the Type of Lyme testing you took. My symptoms started July 18 and currently persists. I was avid runner and cyclist. I’ve been tested for Lyme twice. Both negative. I have muscle issues and fatigue. Some days no issues, other days terrible. I have had numerous tests (to include 3 EMG s)all basically normal.
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    concern3d
    I also have some good days and some bad days. Please let me know if you find out more from your doctors, and I will do the same.
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    concern3d
    I took a tests from IgeneX (igenex.com), and the ones that were most relevant for me were the "Lyme Western Blot IgM" and "Lyme Western Blot IgG" tests. I recommend first finding a doctor using "Provider Search" on the ILADS.org website, and that doctor can then order tests based on your specific symptoms.
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    concern3d
    I did read your post, and personally I don't think you have Lyme, but I'm just a random person on the Internet. If you do a Google search for "Horowitz MSIDS Questionnaire," you can answer a set of questions and see what you score. Some people say that questionnaire is garbage, and some people do not.
    I have remarkably similar symptoms. Please post updates, I am interested.
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    concern3d
    I will make sure to post updates. Please post updates, too. I followed you to see your posts.
    I have more testing tomorrow and a few more upcoming doctors appointments in the near future.
    Hi. Thanks for asking. I just posted an update on my original thread. Still in diagnosis limbo. He wants to see if I progress over the next couple of months. Pure torture...
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