Recent content by ColleenMarie

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    Bulbar ALS - Second Opinion

    These are wonderful suggestions. Your generosity in responding to me is truly a gift. I am going to ask about an anti-depressant next week from my GP. I know that fear, anxiety, stress is not doing me and my psyche much good right now! Once I have my bloodwork back, also Rizuole. I will try...
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    Bulbar ALS - Second Opinion

    I would so appreciate any details you are willing to share. Sadly, most of what I have read is dire, quickly progressing. Because your husband had slow progression, how long did it take to get something of a prognosis? In the first year, were there enough dramatic changes to speech that you...
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    Bulbar ALS - Second Opinion

    Hello Everyone. A bit of an update and thank you for your generous thoughts / advice. I did see an ALS specialist today which was a relief. They are sending out my bloodwork to check for other issues. The Doctor felt that I could have Bulbar ALS and it may be slightly slow in progression. I...
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    Bulbar ALS - Second Opinion

    Thank you so much for your kind responses. I am trying to get in to the Winston-Salem ALS Clinic so things happen sooner. I was also told that Duke will work on their calendar and there could be a cancellation. Unlike some clinics, they have remained open during Covid escalations and they...
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    Bulbar ALS - Second Opinion

    Thank you!
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    Bulbar ALS - Second Opinion

    The neurologist I spoke with felt it was ALS. She did however say she recommended that I seek another opinion from a specialist. I asked her to send my results to the Duke ALS Clinic which they did (and they are incredibly backed up with a full calendar already into August). I spoke to the...
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    Bulbar ALS - Second Opinion

    Thank you!
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    Bulbar ALS - Second Opinion

    I am sorry - forgive me for not answering properly. My Barium Swallow and EMG were both normal in November and December of last year. I met with the Neurologist two weeks ago to review all results. She gave me print outs about ALS, links for support and said the next step is to get a second...
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    Bulbar ALS - Second Opinion

    Sorry -it was EMG (typed badly) and yes, trying to get into Duke ALS Clinic which is really in high demand. I have not been prescribed anything yet. It seemed like this was presented as what they can find now, nothing else that could be done except to move me along to a second opinion. Thank...
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    Bulbar ALS - Second Opinion

    Hello Everyone and thank you for your kind response, time and energy. I have been coping with some speech issues since May of last year. I have finally completed most tests with Neurology and my MRI, Barium Swallow, ENG, Blood Work, Sleep Study (GP put that in) look normal as of now. My...
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