Recent content by codyclan

Cheryl, I’m reading those reports and not seeing where you’re coming from with regard to not being cleared. The reports say that clinically you’re not presenting with ALS. The EMG isn’t showing ALS either. The doc isn’t sure what’s causing your issues and is referring you for a second...

Cheryl, Just a comment to please type your response in the box that appears below the last post in he thread. When you hit the reply button, the previous post is quoted in your new post. For some of our members scrolling through that is difficult, especially if they are using eye gaze. So...

So from what you've written he said that the results are not what he normally sees in ALS. You also reported that he said the incidental findings in the EMG do not support ALS. So it sounds like he still doesn't think it's ALS. Please post your report when you get it.

This is a really common misconception. Hyperviligance doesn’t mean that you’re more aware of impending clinical weakness. Perceived weakness or feeling weak is not a precursor to clinical weakness. Work with your doc but you are not describing ALS —not even an atypical presentation .

There will be others with a medical background that can chime in on this, but no. You see ALS is NOT a muscle disease, it is a disease in the brain that affects the nerves that tell the muscles to move. No signal from the nerve, no movement, but it is not a muscle based problem. Hence the...

Yes, after 18 months you would have noticed failure. You have not described failure. Keep working with your docs. Best wishes.

So what did your doctor say about these symptoms?

I know it’s difficult to understand the idea that feeling weak isn’t a precursor to muscle failure but that’s the way it is in ALS. And because you haven’t experienced true muscle failure, it’s difficult to comprehend. People with ALS doesn’t feel weak. ALS is a brain disease, the muscle...

The doctor's own notes states that the weakness may be your baseline and not related to ALS. Seriously, I can't imagine reading that report and jumping to UMN and LMN findings. You are really reaching. If we had gotten that report with my late husband we would have been ecstatic. Follow...

Still not ALS. Read Laurie’s reply again.

Atrophy in ALS comes AFTER weakness. You do not have weakness and dents do not indicate atrophy. Please do consult with your doctor. It's quite a leap to go from no weakness, twitching and a dent in a specific part of the hand to a terminal disease. All the best.

Do you really believe that doctors aren’t diagnosing you because they don’t want to give you bad news? Really? Doctors DO diagnose ALS “before patients can no longer walk”, although you said that you’re bedridden. (And keep in mind, you are discussing this on a forum where people are really...

This doesn't sound like ALS at all. Failure comes before atrophy in ALS. If you can do everything normally, this is not ALS.

I love the traditional Christmas carols, especially when sung by Jim Nabors! Worst song—Christmas Shoes! Bleh

This is exactly the same question you asked on Wednesday with regard to your upper body. The answer is still the same. The EMG rules out ALS for you. You do NOT have ALS. Enough now. Move on and best of luck to you,