Recent content by cjfarm

Oh... is it TWITCHES?

I give up. What is it?

Hello. My first appointment was on a Monday. I was supposed to have EMG then but we had a bad ice storm the night before and I was stuck on 23 for an hour and half so I was really late. I called to tell them ill just reschedule and they said come anyway we might have to move EMG to next visit...

I just went to my first clinic in Dec at U of M. I saw Dr Feldman. She is a wonderful compassionate Dr. I also saw a bunch of other people that day. I'm still real new so i haven't figured out how that whole thing works yet there. I do know I was there for about 5 hours and it was...

I started with the patchy crusty dry skin. I have my husband melt 2oz of beeswax 2oz of shea butter and 2oz of coconut oil. He pours it in 3 small butter containers and puts in freezer for a couple hours. It comes out in a lotion bar and melts when it comes in contact with skin and easier to rub...

If you were concerned for your body you wouldn't abuse it like that.

One of his rules he gave me last month when I got diagnoseded was don't get sick. He broke his own rule! My thoughts and prayers are coming at you for a quick bounce back.

I don't know if it makes a difference but she did the MG one that consist of 4 tests and the Lambert-Eaton test that was 2 tests.

Well today all the wind went out of my sails. I received the results of my blood work for the hopeful result of MG. It all came back normal. Not what I was hoping for. I guess on the 4th my dr will have info and a appt time and date for the U of Mich ALS clinic. She was really hoping for...

Thank you. My husband is a lot better than he was 4years ago. He walks now but his mind is kinda like dementia sometimes. His stroke wasn't caused by the typical ways so the drs said his mind might stay like this even though he got back other stuff. They don't expect his brain to heal or make...

Yep. The blood panel I did yesterday.

Bigmark, hello. I am headed to u of Mich next. The second neuro said she will have everything set up by my next appt on the 4th for clinic. The first dr diagnosed just ALS. I didn't like that so I hoped for something different. Didn't happen.

That's exactly what I was wondering. Thank you. She had so much going on at once it made everyone's head spin.

Thank you so much. I'm better today. My mom came over for awhile and we got to talk about all kinds of stuff not regarding being "sick". I'm sure as days go by it will be business as usual. Hopefully anyway!

I replied to you yesterday but I think it got lost in space. It said at the bottom of your message you are the sixth generation with this. I looked up some info and really couldn't get answers. As far as we know this isn't in the family. My mom brought up to me that my grandmother had "a...