I'm so sorry to hear about your rapid onset MND. There is a brutal and unfair irony when medical doctors get rare diseases, but I guess we are all human. I've noticed you helping people with their symptoms already on this board, and that is very admirable, especially because of your recent...
Hello,
I just wanted to say that I've found a lot of your posts in DIHALS incredibly helpful. That you take your precious time to help people who are often wracked with anxiety over strange symptoms is incredibly admirable.
I read this today and the attached excerpt is one of the things that is keeping me sane right now.
http://www.bcmj.org/article/amyotrophic-lateral-sclerosis-review
All of my symptoms have been entirely symmetrical since day one. Both calfs, both glutes, both eyes, both arms, both palms/hands...
Thanks for your reply. I didn't come across the BFS symtoms list until after my most recent Neurologist visit, the second one. My GP is completely at a loss and just says I need counseling. I (ignorantly) thought BFS was just twitching. I had no idea it involved a whole host of neurological...
Hello, my old post was closed so I've summarized it below in a more simple and streamlined form, with the addition of my new symptoms:
Q1 2016 - slight essential tremor in my hands.
Q2 2016 - persistent, 24/7 tightness in both calves, which eventually spread to gluteal areas. Gluteal...
als
back
bfs
brain
burning
choking
clinical
eyes
family
fear
fingers
ice
military
mri
muscle
muscle twitching
neurologist
onset
please help
second opinion
stress
symptoms
tests
tremor
twitching
weakness
worry
100% serious. Your comment that I would know by now in regards to bulbar symptoms was incredibly helpful, thank you. This whole thread has helped. I'm 100% serious when I say you people here provide a heroic service to your fellow man.
Thanks Twitcherama for sharing your wisdom and experience. Your post was a huge help. You are a heroic individual, no different than the 300 Spartans of Thermopylae in my eyes.
I'm seeing my GP on Monday to give her the above list. I'll bring up the anxiety I'm getting from my main symptoms and ask if she thinks I should see a psychiatrist. I'm a walking mess right now, listening for sluring in every word I speak.
Thanks for your prompt and kind reply ShiftKicker . I definitely suffer from health-related anxiety, but it's due to my symptoms, not just any given day. I do tend to go to worst case scenario, but my symptoms are legitimately there: tremors, imbalance and awkward swallowing. And of course, the...
Hello,
First and foremost thank you for creating this site; the people who write here are heroes, truly. I know a number of what society would normally call heroes: men with medals on their chests etc, and the people who fight their own battle with ALS are no less heroic, even more so when they...
arm
back
balance
brain
death
decline
fingers
lump
mri
neurologist
please help
please help me
reading
scared
speech
stiffness
swallowing
swallowing issues
symptoms
symptoms of als
tongue
tremor
worry
wrong
young