Recent content by ChristineRK

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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hello, everyone! I’m very glad you had a nice visit Nikki! Things like that make a world of difference. Anyway this is Christine Kranz and I am still here! :-) My balance is worse and I fall more, but I’m still grateful for SO many things. I have days where I annoy the heck out of myself, I...
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    New and so much pain. Need help.

    SO BEAUTIFUL!!! A scenery like that has my name written all over it!! Enjoy the visit with your brother and the beautiful view! I’m so sorry you are here - but welcome. (I am giving you a social distancing hug! And also just a long distance hug because We are far away! That is what’s great...
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    Can't get off the toilet independently-what now?

    Well, HELLO, NEIGHBOR!!! I’m glad my post helped! It’s funny, because when I read the posts in the threads I go in - I know yours are always going to be helpful, insightful and reliable. It’s nice to know that I have a knowledgeable neighbor out there! ALL my best, -Christine 😊
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    Can't get off the toilet independently-what now?

    Hi Dorothy! I’m sorry I took so long to respond – but I’ve been off the site for a little bit. I’m glad you like the idea of the supra pubic catheter! It really saves me time, the urgency issue is eliminated, and the integrity of my modesty is maintained. If you have it done and can think...
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    Can't get off the toilet independently-what now?

    Hello everyone! i started reading this article and I was yelling (inside of course!) ‘look at my post on my Suprapubic catheter!’ Well I’m there one who has it - and I love, love, love it! I drink fluids any time of the day which, I feel, is essential. If you can move your hands and arms you...
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    you know what bugs me?

    I was going to ask - (sorry, fellas!) - is there any correlation to ALS and or stopped periods/menopause? Or missing 3 months and then 'surprise!'. Has anyone noticed? I used to be 28 days like clock work - then I missed 3 months and then in the 4th - 'it' came back. BUT I have to admit -...
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    My dad was recently diagnosed with ALS & I don't know how to act

    <quoted text removed> Hello - I'm very sorry this is happening to you at a time when you could really need it. Please know you are not alone in this. It was almost as if as soon as I was diagnosed, my children pulled away from me. I haven't seen or heard from my son in over a year (and...
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    How to relieve pain from sitting long time

    Oh geez! Just got a new one. I even told people ‘this is kind of different, I need to figure this out!’. Sorry - and THANK YOU!! :-)
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    How to relieve pain from sitting long time

    ........ btw, is rather be on SoCal right now than in this cold in ‘The Land’.!
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    How to relieve pain from sitting long time

    Jim -when I open your PDF, there is nothing there. I would love to see your set up! If not - no worries! -Christine
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    How to relieve pain from sitting long time

    Hey Hey, Jim! thanks so very much for your post! I clipped it and saved it for future reference.... I’m not quite as far along as you are and as far as the ‘people’ resources - ditto. What do you do when you feel ‘restless’? (Or maybe you don’t?) I also have issues with my hips being in...
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    For the females- suprapubic catheter

    I’ve had this for awhile now - and aside from the lack of feeling ‘feminine’ sometimes, BEST THING I EVER DID!! Also, for those ‘romantic evenings’ tune can be rolled up and covered with a tegaderm patch or something similar. Therefore you only feel like you have a ‘boo-boo’ that you’re...
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    Help me understand disability benefits?

    Thanks, Nikki! Yes, I'm in Ohio and started to make a call regarding Medicare Advantage. I couldn't get help at the time as the wait would be long. In the meantime, I made the mistake of going online and filling out a questionnaire - now I'm getting innundated with calls/e-mails I don't want...
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    Help me understand disability benefits?

    I hear ya, Kim! I'm in (was) in accounting as well. Right now, my primary is Medicare and secondary is Medical Mutual. Will be losing Medical Mutual and needed to know what you all recommended as a secondary. Medicare is crazy expensive and the deductible is a 'forget it!' issue! Do you...
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    Help me understand disability benefits?

    LOL! Thanks for all of your help, Nikki! Have a beautiful holiday and a Happy New Year! ~Christine
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