Recent content by ChrisMc

Our daughter with bulbar ALS passed away last April. She was walking with a walker for balance right up until a few days before she died and even then she could transfer onto the toilet or chair with some help. She used a wheelchair for longer distances, but not at home until the last few...

My daughter passed away 3 months ago from ALS and FTD. She hardly used her tablet at all because her FTD limited her understanding. My son-in-law is looking to sell her tablet for $2000. It is an Eyetech EyeOn Air Eye Tracking Communication Aid. Let me know if you are interested. It was...

Thank you all for your words of comfort. There is a big hole in our lives and we miss her so much, but we are glad she is free from her broken ALS body. The only good thing about ALS is that it prepares you to let them go.

Our daughter, Amy, passed away in our home on Friday, April 7th. She had FTD and Bulbar Onset ALS which had progressed to the point where she could no longer speak. She could still walk up to a few days before her death and even then could help transfer to toilet or chair, but she was very...

We moved our daughter to our home on April 5th when she suddenly couldn't do things that she had been able to do just the week before and her husband needed help. By April 7th she had gone downhill so fast that our family spent the day visiting and spending time with her, especially her husband...

Last Wednesday our daughter, Amy, had 3 episodes of just freezing with a look of horror on her face. She doesn't make a sound when these episodes hit because she can't breathe or move when it happens. These each seemed longer than in the past and she seemed dazed when she finally relaxed from...

Thank you for replies to my post. Our daughter did a medical directive when she was first diagnosed and indicated that she does not want a feeding tube or ventilator. Her husband has talked with us about her wishes and his. Their daughters are 7 and 9 years old and are in counseling. At this...

Our 43 year old daughter was diagnosed with bulbar onset ALS with FTD in December 2021. She has 2 young daughters and her husband is her primary caregiver, but my husband and I have her with us 3 days a week while her husband goes into the office to work. She can still walk, but is unsteady...