ChrisMc

My 43 year old daughter was diagnosed with Bulbar onset ALS in December 2021. She also has FTD that may have started some years before ALS symptoms. Her husband is her primary caregiver, but I have her 3 days a week while he works in the office. They have 2 daughters who are 7 and 9 years old. We have agreed to have our daughter come to live with us when the time comes that she needs more constant care. I have many questions about what is to come.