Recent content by chrismaya

Thank you, Joel. I just don't know what's worse: Living with a husband and four children WONDERING, or just getting tested and seeing what I may or may not be dealing with. Thanks.

But what if I test negative? Ya know?

My mom was diagnosed at age 78 with bulbar onset ALS. She passed away in Aug. of 2008. ALS was both horrible and beautiful. The beautiful part was my mother showed such strength and dignity that I will forever carry with me. ALS changed her for the better. She became a fighter for...

Speech first followed quite quickly by swallowing difficulties. (my mom)

I have some very difficult moments thinking I have ALS at times. It does not consume my life, but it affects my life. My mom passed away from ALS. I'm thinking of trying out how to become tested to see if I have a genetic defect for the disease (SOD1?) Has anyone done this, and what do...

My mother was diagnosed at age 77.

Just "putting it out there," that my mom, who died from ALS, had LOW VITAMIN D!

...since my mother died from ALS. She had been coughing for quite some time whenever we would eat together. She always blamed it on "too much pepper." Then some dementia set in. Then some breathlessness. Then some choking. Then some right-arm difficulties. Then slurring of...

another question. My mom was diagnosed at the age of 77. Does anyone know how common this is? Just trying to figure it all out.

I can tell you that when my mom FIRST went to a neuro, she had an MRI and was diagnosed with hardening of the arteries of the brain, typical with aging. At that time, she had some dementia, swallowing difficulty, and a slight stooped posture. After I noticed her just getting worse, I...

My mom definitely had dementia right around the time some of her ALS symptoms started. How common is this; does anyone know? I thank God for her dementia. She had no clue what was happening to her.

Well, definitely don't freak out until you see a neuro, but I will be honest and say a lot of what you describe was my mom, who had ALS.

All I know is in the midst of my mother showing signs of ALS, a typical physical revealed she had quite a Vitamin D deficiency.

My mother had a CONSTANT urge to urinate, especially during the end of the disease. She was tested for a UTI and did not have one. She would wake my father every 10 minutes for a few HOURS during the night saying she had to go. I think it could be part of the disease process, in my...

My mother died in August due to ALS. My heart goes out to you. I have young children, and can only imagine what you are going through.