Recent content by Chris3274

This last Christmas I painted glass ornaments and made beaded wire hangers for them. I painted and beaded polymer clay ornaments made with cookie cutters, (cats and hearts). The paint is called Alcohol Ink. Really nice and easy to work with. I gave them as gifts and the clay ornaments I used...

I'm in. Since 2009. Use a rollator and have zero balance. Affecting arms/hands somewhat and speech/saliva. I can't tell if it's progressing quickly or not. I think the walking progression has stopped. Hopefully. Much worse and I'll be in a power chair.

Hi Nikki: You sent me the link to the Facebook Group and I opened it from my work computer. Since I am not too computer savvy I would like to know where I go on the forum to get that link again from my home computer. Thanks, Chris

Hi Suzannah" My story is exactly opposite of yours. I was diagnosed with either Parkinson's or Dopa Responsive Dystonia because of what the doctors thought was dystonia and not spasticity. I had a terrific response with the drug sinemet. For two days only. I spent $5000 to take a test which...

Hi Nikki: Please send me the link.

Hi Eydie: WELCOME! As always, sorry you have this disease. Difficult to cope with at times. From your post it seems we are at the same place with symptoms. I use a rollator, fall often due to ero balance and my speech is garbled. I talk very slowly, which is the exact opposite of my...

thanks TB My thinking was the same regarding some shielding device however the Mass. study asked specifically if I had any metal in my wrist. I said no and he was relieved. I'll let you know.

Thanks Nikki. That was extremely helpful. I will discuss titanium with Jennifer @ MA and my nurse practitioner at NIH. And the head of MRI dept. at UCSD is a friend. I will be very thorough. Thanks again. Great forum!

Thank you for your kind replies. It took about 8 days but I am finally going to ucsd specialist about my wrist. My concern is this: if the repair is surgery and a metal plate is attached then I will no longer be able to have brain mri or any other for that matter. Are Mri's important for my...

I don't have a weight gain. More a shifting of the sands. I am becoming my mother. I am getting a barrel body. I have a rowing machine that I can't use until my wrist is fixed. I can no longer swim. No treadmill or stationary bike. Due to inactivity I now have osteoporosis and the side...

Hi all: I typed a lengthy post and it evaporated into thin air, I am glad for that because it was awfully negative. I fell in June and sustained a compound fracture of my right wrist (of course). Got that cast off yesterday and xrays revealed that the bones shifted in the cast and now my...

I'm going in November if my blood proves to be comparable with the dye that's injected. I'll send that in this week. I'm in San Diego. They said they would reimburse me for almost if not all the expenses to include the flight. Give em a call!

I will contact them. Perhaps my being on the west coast is cost prohibitive. They paid my air fare in 2014. i met with Dr. Floeter. She confirmed my diagnosis.

I couldn't get a diagnosis and my uncle's cardiologist told me to apply to NIH, UDC. I did and was accepted. It helped that both my parents were alive and with my sister we made up a 4 model blood study. I now go to UCSD (San Diego) Dr. Ravitz. Thanks for posting the study. Nurown is in...

Hi Nikki: I emailed Paul. If I don't hear back Monday I'll call. I'm in.