Recent content by Chewy302

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    Priorities??

    Hello everyone, I haven't posted very much, but I need to vent a little today. My BF was officially diagnosed with ALS Dec 2016, but had symptoms for at least a year prior to that. Now that he is becoming less mobile, I find it very frustrating that he is not taking steps to make...
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    Frustated with Excuses (Venting!)

    Thank you so much for understanding my need to vent :) I try not to upset him with my feelings very often because I know he feels guilty about not being about to do things the way he used to. He spent all day today with his dad doing lawn work, so I know he is VERY tired tonight.
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    Frustated with Excuses (Venting!)

    You have brought up good points that I did not think about on Sunday when I posted here. Skype didn't cross my mind, but my son and I could have gone to his house except that my son was doing laundry and packing to go to his dad for the night. In my ignorance at the time, I didn't fully...
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    Frustated with Excuses (Venting!)

    Thank you for your response. Yes, we took a break from our relationship for awhile before his ALS diagnosis because I was so frustrated. When he was diagnosed, I thought that was the underlying reason for some of his quirks. I will probably never be sure though. It does help to know that...
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    Frustated with Excuses (Venting!)

    We don't really have a plan at this point. He is not walking very well and his speech is starting to slur, but he and I live separately. His parents are extremely religious and would definitely frown upon us living together even if it was for his health issues.
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    Frustated with Excuses (Venting!)

    Thank you so much for your insight. You have described the same feelings he seems to have, too. And, I think some of our issues before were due to ALS, but it just hadn't been diagnosed yet. I just don't understand how visiting with other people, even at his own home, can exhaust him. I...
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    Frustated with Excuses (Venting!)

    Yes, I agree with you about just "letting him be" if he feels like something he does is helping him. But, I am a scientist and my training logically tells me otherwise. I could be completely wrong though! Which is why I posted here instead of venting to him. I have no idea how this disease...
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    Frustated with Excuses (Venting!)

    Yes, there were, and we actually took a break from the relationship because of some of those issues. Then he was diagnosed with ALS, and I thought that was the reason he felt the way he did. :/
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    Frustated with Excuses (Venting!)

    Hello everyone, I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...
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    Never thought I would be here...

    Hello Everyone, My boyfriend was recently diagnosed with ALS, but he had shown classic symptoms for well over a year. We were ready for the diagnosis, but it was still a heartbreaking moment for us. I am feeling better most days however, I do have moments when I realize he may not be with me...
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