Hello everyone,
I haven't posted very much, but I need to vent a little today. My BF was officially diagnosed with ALS Dec 2016, but had symptoms for at least a year prior to that.
Now that he is becoming less mobile, I find it very frustrating that he is not taking steps to make...
Thank you so much for understanding my need to vent :) I try not to upset him with my feelings very often because I know he feels guilty about not being about to do things the way he used to. He spent all day today with his dad doing lawn work, so I know he is VERY tired tonight.
You have brought up good points that I did not think about on Sunday when I posted here. Skype didn't cross my mind, but my son and I could have gone to his house except that my son was doing laundry and packing to go to his dad for the night. In my ignorance at the time, I didn't fully...
Thank you for your response. Yes, we took a break from our relationship for awhile before his ALS diagnosis because I was so frustrated. When he was diagnosed, I thought that was the underlying reason for some of his quirks. I will probably never be sure though. It does help to know that...
We don't really have a plan at this point. He is not walking very well and his speech is starting to slur, but he and I live separately. His parents are extremely religious and would definitely frown upon us living together even if it was for his health issues.
Thank you so much for your insight. You have described the same feelings he seems to have, too. And, I think some of our issues before were due to ALS, but it just hadn't been diagnosed yet. I just don't understand how visiting with other people, even at his own home, can exhaust him. I...
Yes, I agree with you about just "letting him be" if he feels like something he does is helping him. But, I am a scientist and my training logically tells me otherwise. I could be completely wrong though! Which is why I posted here instead of venting to him. I have no idea how this disease...
Yes, there were, and we actually took a break from the relationship because of some of those issues. Then he was diagnosed with ALS, and I thought that was the reason he felt the way he did. :/
Hello everyone,
I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...
Hello Everyone,
My boyfriend was recently diagnosed with ALS, but he had shown classic symptoms for well over a year. We were ready for the diagnosis, but it was still a heartbreaking moment for us. I am feeling better most days however, I do have moments when I realize he may not be with me...