We were told in September by a friend who is a neurologist that he was 99% sure my dad had Als. He has mostly lower body symptoms with the right leg being worse. He has some weakness in his upper body but other than that we haven’t seen much change other than that. He has widespread fasiculations pretty much all over his body. Crossing my fingers he has a slow progression
My husband has not been on the trial since March 28th. I believe if he had continued on the clinical trial, he would have committed suicide, as the Pimozide completely changed him and made him have suicidal ideation.. No joke.
The closest place to you for your dad to try the Pimozide clinical trial is Calgary (I think).