Hi Sheryl,
Last night was a really bad night.....I didn't get to sleep until 3am....you are so right this is terrible for everyone involved. But I really feel bad for the CALS the pain they have to deal with 24/7.....it's just not fair for people to suffer like that.......keep in touch love to...
Hi Sheryl,
Sorry I have been online for a while.....today was bad day. I just wanted hospice to take him to home and clear me of my duties......but of course that did not happen, but I am thinking about full time inhome care to help me, I just can't do this alone.
Christina
A small amount help now.....remember in May when my husband was diagnosed they treated me really bad. So they now come once a week for three hours and hate doing that.....or make excuss to come to help. So basically I'm by myself. My parents live in Nebraska and my Mom takes care of my Dad...
Hi anne,
The only help I could pass on is that my husband has hospital bed where he can adjust the legs and head. But these days he is loosing all feeling and touch in his hands.....so I too am running out of ideas to help out.
Christina
Hi Everyone,
I haven't been on-line for a while......but I would like some feed back from our wonderful caregivers out there.....my question is:
What do you do to help with sleepless nights. I work 8 to 5 monday thur friday...and have three boys. I am having to get up every two hours to help...