of course it is a personal decison. she also decided to ask on this forum so she can gather information and make a decision based on the experiences of others... thanks for the replies, it was helpful.
She wanted us to put the question up on an ALS forum to see what others say... So we can gather information of others who have had experience or been through it so she can make a decision.
My fiance's grandmother has had ALS/PBP for about a year and a half and we've got her a feeding tube almost a year ago. Her phlegm has gotten worse, even when switching from formula to blended foods, and her doctor suggested having a tracheotomy. Just wondering if anyone has had it and if it helps?
Thank you so much!! We are totally aligned with everything you said :)
We've been doing raw vegan smoothies through her tube, but then we had gotten a clog of something, had to get tube replaced and then the doctor scolded her to only use formula. Since back on formula, lots of problems with...
I do need to get permission from a doctor because without it my grandma won't allow us to put blended food in the tube. She screams and cries when we suggest it now because the doctor already said no. She's a good girl and won't break any rules. She is back to her mucous and constipation...
It's my grandma who needs to be told by a doctor it is okay because she is a 'good girl' and won't do anything the doctor already told her not to do. The doctor says no and she's sold, that's it. But we can see that it causes her more mucus and constipation that wasn't happening with the blended...
The feeding tube formula that has been provided (we've tried many different formulas) is causing my grandmother's health decline. :sad: I sometimes give her real food and have been for the last week with great results. :razz: She was no longer constipated and feels so much better without the...
hello! I read on a thread that you are raw vegan and I am thinking of doing this for my grandma. If you have any tips for me, please let me know as we are brand new to this.