Recent content by charkayr

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    Diagnosed

    Hello, my name is Charlene and am 62 yrs old..In was diagnosed 10/10/11....symptoms were way before diagnosis...I had to put in a chair lift (5/2011)because we have stairs to bedrooms up. I fought this transistion but have to say I am glad I did it because it gives me the freedom to go to...
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    Heavy legs

    My doctor ordered a sliding board...it's about 30 to 36 inches long and beveled on both sides for easy transitioning from chairs to car seats ..into beds and excetra. I cannot stand so therefore being able to slip the board under me and sliding across to the othe seat is so helpful...one end of...
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    Tingling/Numbness/Pain

    Newly diagnosed...I have the weakness, the "almost going to sleep feeling in my legs and feet" the almost pins and needles effect..my question is does this ever go away or is this something that just continues to spread thoughout your whole body eventually ? I was told that ALS is virtually...
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    Heavy legs

    I also have the heavy leg syndrome, I can't move my right leg and the other doesn't do much either..I sleep on my left side because of the right leg..I am somewhat inclined pillows, pillows, pillows...I use one between my knees, helps elevate and that way they are not lying on the other one...
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    Newly diagnosed and feel lost

    Hello to everyone and Thank you for aknowledging Mark and I. I am grateful for all of you on this site..encouragement is a wonderful thing. Although I am not too happy with diagnosis, I have become somewhat at peace with it...most people don't know when they will go from this life God has given...
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    Just my thoughts

    Beautifully said...and I also walk with you..God Bless
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    Things that you wish you could've experienced

    Look ahead of what can still be, I was diasgnosed 10/2010...I cry still sometimes, but I thank God everyday he gives me. Do things you can do now...I will never see Italy..but I can get up tomorrow and do something else..I have traveled by air places, I went to the beach last year in August ...
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    Newly diagnosed and feel lost

    Hi Mark, My name is Char..I also was diagnosed in Oct 2010...I feel your pain, it is very confusing this ALS dianosis..and a painful one emotionally to accept. I no longer walk, legs gone so to speak, hands going...I cry, I am frustrated "How could this happen" what about my family mother 6...
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    Wheel chairs

    Hello, I am also in the same situation...I bought a power chair used on Craigslist.com , you would be suprised how many people are selling these. I bought one for 600.00 and it was only a yr old. Also we have a split level home , so I had my husband build a ramp to the family room...for approx...
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