Recent content by ccraig1771

  1. C

    Encouraging News

    I had to start a new thread because the old one was closed. My original post was about my concern that my mother's ALS was Familial. I had received word that my Aunt may have ALS as well. However today I received a call that she doesn't have it and has 5% chance of getting it. (This is the...
  2. C

    My Mother

    I found this forum in September of 2015. My mother had just been diagnosed. She passed away with me and her family by her side on December 29th. I am beyond devastated and angry at this disease, but I want to say thank you to each and every one of you on this site. You gave me info and guidance...
  3. C

    Mom's Update

    I found this site in September when my mother was diagnosed with advanced state ALS. So far she is holding her own. She struggles everyday and can barely speak. My heart breaks for her everyday, but we are hoping to enjoy our Christmas with her. Merry Christmas and Happy Holiday's everyone!
  4. C

    I was praying this wasn't Familial

    Yes it is a "May". As a matter of fact I am a little upset with my cousin who jumped the gun and told me the "news" early Monday morning. Her story went from "She was diagnosed" to "her doctor wants her tested. My Aunt apparently has facial drooping and slurring, which can be signs of stroke or...
  5. C

    I was praying this wasn't Familial

    Thanks Again NIkki! I am trying to stay calm. I'm a nervous Nellie theses days. I don't know if I can have my Mom tested but I will try. She is very emotional fragile. I don't want to upset her.
  6. C

    I was praying this wasn't Familial

    Nikki, thank you for your response. Do you happen to know the statistics of how likely I am to get ALS if I have the mutation?
  7. C

    I was praying this wasn't Familial

    My mom was diagnosed in September with no other known relatives with the disease. I felt pretty secure that this was not something that would be passed on to me and my children. However I got word this morning that my mom's sister may have ALS. I am pretty scared. I know that I have a fifty...
  8. C

    Questions About Blood Pressure

    Yes she does have a peg tube. She says that she is always "too full" : ( We are a family of eaters. As a matter of fact my mother never needed an excuse to cook a big family meal for us. So her not being able to eat is so hard for me to deal with, although it doesn't seem to bother her much. She...
  9. C

    Questions About Blood Pressure

    I would have to agree with you on this.
  10. C

    Questions About Blood Pressure

    Thank you so much! I thought as much, but she is becoming very much like a child. It is strange how the roles have switched her. It seems like I have to take the motherly role now. But it is difficult seeing her be upset.
  11. C

    Questions About Blood Pressure

    Hello everyone. I am still a very new caregiver for my 64 year old mother with rapidly advancing ALS. She was diagnosed at the end of September and Hospice called within a week. She is still in denial of how much time she has, but the doctors say that it isn't long. So here is my...
  12. C

    Good days, bad days

    By the way I love this. "Don't expect logical-think love!"
  13. C

    Good days, bad days

    Thanks everyone! Thanks Star for the info. I will ask her nurse about that. Also @ cheerleader, I think that you are right. She began crying this morning, and when she saw the concern on my face she immediately composed herself. I think she is being strong for me. I told her that as her daughter...
  14. C

    Good days, bad days

    I am still very new to this forum, my mother was only diagnosed three weeks ago and given less than 6 months to live, but in this time I will like we have been dealing with this forever. Watching the strong woman that I know struggle to swallow and breath. But we do have good days. We actually...
  15. C

    Mother Newly Diagnosed but Advanced Stage

    Thank you again. I read her your posts and it is making her feel better. She so wants to be here as long as she can, and we want that as well. The shock is starting to wear off for me, but I am not so sure for her. I really like this forum and find it helpful. I will be here often.
Back
Top