Recent content by ccjjcc

I just looked up Speakbook.What a wonderful idea. I definitely plan to get that going, it would be great when the machine isn't in the right place. The Dynavox, if it's lined up right, let's him on the internet, and he can control the tv with it too. It's just so frustrating to get positioned...

Hi, I will try to look up Speakbook. He can't use anything, only his eyes. I was hoping there might be something I could get on his laptop and position that in front of him We do use a letter board when the Dynavox isn't lined up right or if he goes to the hospital without it. There was a...

Hi Al, I edited my post but now it's there 3 times. It's just the most recent one I'm trying to save, I don't know how to delete the previous 2. Thanks.

Hi, my brother (see earlier posts) is completely paralyzed now except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

Hi, my brother (see earlier posts) is completely paralyzed now except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

Hi, my brother (see earlier posts) is completely paralyzed except for his face. He has a straw for a call light and can't press anything with any part of his body. He has lost the ability to speak. He has a Dynavox which we have been most grateful for, but we are having real difficulties...

I'm wondering about a new pain med they are starting my brother on - methadone. It's in addition to the oxycodone he is already on, but which isn't relieving all the pain. He will still be taking it AND the methadone. I'm wondering what this indicates, the fact that he now needs the additional...

Also, I had read this on an old thread, and this is what the speech person where he is had also said - almost verbatim Hi Everyone. Just wanted to make a few comments about eating and trachs. I am an licensed Speech Pathologist that works with trach/vent patients everyday at the hospital I work...

Hi, I was going to ask a question about eating on a vent. My brother got his trach almost 3 months ago and the feeding tube with it. He has been tested several times and been given the go ahead to have liquids, and a mechanical soft diet. He's had breakfasts for about a week. Now, he is...

Hi brother Bob!

i'm sorry to hear about the loss of your mother in law.

I'm sorry to hear about the loss of your father.

Okay, so the pulmonologist came in and checked out my brother - he detected a small "leak" in the trache, but "cant'" change out the trache for a couple of weeks yet because it's so new. Also the RT supervisor came in. They said all his stats are good and he doesn't have a lot of secretions. He...

Thank you Joel. I was over there an it seems the same as in the hospital when they changed out the trach and put in a fenistrated trach - then he had 24 hours of misery until someone said it wasn't in all the way (by 1/4 of an inch) and fixed it. Same symptoms this time. The RT had changed the...

Hi, so my brother is back in the nursing home from the hospital. I thought it was going fairly well except now he feels "congested". The RT who has 24 years experience said that it's normal to feel like you can't get a deep breath, that it's the muscles that are weak and cause that sensation...