Recent content by Carolynyg

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    Short of breath when talking

    Kate, this was so interesting, I emailed the quote to a respiratory therapist friend, who also founded extremely interesting. We admitted it covered a gap in our knowledge! thanks so much.
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    Short of breath when talking

    Wow, that was fascinating about the different muscles used in talking versus regular tidal breathing! THANKS
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    Short of breath when talking

    WOW, thanks so much!
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    Short of breath when talking

    I have had lower limb onset ALS for three years. In the last several months I find myself getting short of breath while talking. I do not get short of breath when I'm lying down. This seems odd to me and I just wonder if anyone else has experienced that. As a former respiratory therapist, it...
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    PALS roll call Wednesdays ( or whenever)

    Here!! Like Charlene said, I'm grateful for the wonderful people here who UNDERSTAND. I'm about two 1/2 years in, can do most things except walk for now
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    Stopping eating and drinking

    TOTALLY agree, Nikki, that is exactly the impression I got!! Thanks! I wish this was (at least a bit) easier too...
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    Stopping eating and drinking

    Thanks Sherry, I appreciate your input and encouragement so MUCH!!!
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    Stopping eating and drinking

    Thanks Johnson, it's such a relief to hear that others are feeling the same things I am. Thank you for telling me what your Neuro said....I've contacted Compassion and Choices and they made it sound like too much of a cakewalk IMHO!!
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    a tip is sought

    GREAT idea!!!! Love the humor!
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    Stopping eating and drinking

    Ha ha about Texas!!!
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    Stopping eating and drinking

    Thanks Laurie, you're right!! But I do have to move, I simply cannot live alone any longer...
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    Stopping eating and drinking

    Yes Tillie, as I've read more about bulbar symptoms, I'm grateful for what I have!!
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    Stopping eating and drinking

    Thank you Pat, I'm very touched by your reply...take care
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    Stopping eating and drinking

    Wow, thanks SO much everyone for your replies, I am so touched by all of them. (I'm gonna defend myself here, hey, I KNOW that no one who's actually done VSED can tell me what it was like, ha!) But I figured some people would have heard stories, and I appreciate what everyone shared...I mean...
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    a tip is sought

    I recently switched to dresses due to this problem, in spite of my wasted legs and swollen purple feet, which I used to hide at all costs, but I guess that's not an option for the guys!! I've had to buy whole new wardrobes through the various stages of this disease! I appreciate the tips, maybe...
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