Recent content by Caroline32

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    Non ALS/MND symptoms - misdiagnosis?

    As far as I'm aware the field worker has seen Dad once when he was first diagnosed and things were still relatively 'normal'. She was very helpful in letting him know what was going to happen to his body. However she was the one who mentioned to my mother last week on the phone that eye lid...
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    Non ALS/MND symptoms - misdiagnosis?

    my apologies Fitzroy. You are quite right. I should have put Southland not South Island. Meeting with the neurologist at the end of the month so will have the chance to ask all of the questions we were too shocked and un-knowledgeable to ask when Dad was diagnosed.
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    Non ALS/MND symptoms - misdiagnosis?

    Thank you Annie's Phil for your speedy reply. Your advice has been very helpful. And I am so sorry for loss. Thank you for taking the time to reply to people like myself. It means a lot. Unfortunately my father lives in a remote area of New Zealand and there is only one neurologist in the South...
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    Non ALS/MND symptoms - misdiagnosis?

    Hi everyone, I'm new to the forum but have some questions that some of you may be able to answer for me. My father is 64 years old was diagnosed in May last year with MND. He has deteriorated very quickly and since his initial diagnosis has not heard from his neurologist at all. To date he has...
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