Recent content by carlyy_82

Hi guys! I think I'll change my username to crazy lady! They've changed my appointment AGAIN! Soooo Thursday 3 pm is the new time. Every time they change it I get a little crazier...not long now though. I'll keep you all posted :)

Nikki, You are such a beautiful and kind soul, I am so sorry you are going through this. Your support is helping me get through this tough time. I hope you know how much I appreciate it. x

I'm starting to let my mind wander. My kids are so little, Im a control freak, what if they get it and I'm not here to look after them? I think that last one is my major worry. If this disease takes me like it took my Dad and his Dad, I won't be here to look after them, and they will know...

Hi, my CT came back clear. It is what it is ;)

Thanks guys, I actually got a phone call today saying they have made me an appointment for the 6 th of June. EMG to be done and all tests reviewed, possible diagnosis date. He is going away shortly after that and wants to see me before. No more putting off the CT, I'm having it tomorrow. I'll...

Thanks Nikki for reply. Yes I'm hoping the NCS thing is a good sign, but I'm terrible, I still haven't had my ct. I'm just trying to get on with life, I don't really want to have the EMG now until August. What's it going to change? I went from thinking I had to know to I don't want to know...

Hi guys! Yep it's C9, bloody terrible gone. Dad had FTD and MND, Grandpa had Bulbar. I didn't get as much info as I'd hoped but that seems to be a trend on some of these boards! My NCS was abnormal, mainly in L leg, consistent with major injury ( which I've never had). Brachioradialus sp...

Hi, I'm Carly, 32 year old single mum of a 6 year old girl and 5 year old boy. My Dad and his Dad had MND. (I'm an Aussie). I have had symptoms for about a year but crunch time is finally here. Nerve conduction studies being done tomorrow. I'm starting to get really nervous now, as the Neuro...