Recent content by caregiver0204

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    Smoking and ALS

    Smoking My husband was diagnosed 3.5 years ago and has smoked 1-2 packs a day for 25 years. He has had 1 heart attack 1 quad bypass 8 years ago. stints 7 years ago and went off all his heart meds after the ALS diagnosed. He will get out of breath if he does to much. I wonder now how much smoke...
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    Shocking/Devistating News

    Hi Chad, love your name. My husbands Dr. gave him 6 months to live over two years ago and he is not on a Bi-Pap. Wishing you the best.
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    lift recliner chair

    My husband loves his and it is a huge help, we as well got it from the ASL loan center.
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    Another Hand Brace

    I like your braces, My husband has special spoons and forks our trouble now is that it is hard for him to reach his mouth the distance from his mouth and the plate is to far. I ordered those fancy tv trays I think they are called table mates and I hope I can set it high enough so that the...
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    Shaving-Need ideas

    I shave my husband with a regular 3 blade razor, the electric type did not work near as well and took 3 times a long to complete the task. It can be hard for him to make the faces he needs to do for me to get a close shave and I can always feel a place or two I missed. I usually catch my face in...
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    Need advice

    The big wish We have the bidet toilet seat made by Toto and my husband loves it, actually the whole family loves it. We had fun playing tricks on my little nieces when we first had it installed. It also heats the seat and the water. Once you have one will will always want it. Deb
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    Pain in hand and fingers

    My husband and I have separate rooms and beds, sometimes he will lie in our bed, but I have to get up at 5:30 for work and he will sleep until 11:00 some days, I get a much better sleep in separate rooms and I check on him several times a night because he can make some crazy noises.
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    Beard is Thicker

    I shave my husband and it can be a little scary, He has had a beard for the last 25 years but for cleanliness I shaved, it was to hard to keep clean and he has a hard time getting the food into his mouth and then the silva can be an issue as well. I don't know it the beard it tougher or if it's...
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    Gargle noise

    Thank you for the wonderful ideas re: the soy products. We are using sheep skin heal cuffs and pillow to "float his feet" The sores are covered with Mediplast. They don't seem to bother him now but I know they can get much worse, his arms are not working well but he can still walk so my hope is...
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    Gargle noise

    Back in the day of his so called healthy life it was not uncommon for him to drink 1/2 gallon of milk a day. The milk shakes are about the only thing he wants and I hate to take anything he enjoys away. He loves McDonald's shakes. I know all the drive thru employees. I could try to sneak a soy...
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    Gargle noise

    Thank you, I can't believe I did not think about the milk causing more phlem. He does not have a Bi-Pap and has refused one. He can be IS a very stuborn man. He never did a sleep test or had his oxygen levels checked so we have no idea where his breathing levels are. Sometime I wish I knew his...
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    Gargle noise

    The night before last my husband starting making a gargling noise every time he took a breath in and a loud moan while breathing out. I was pretty freaked out, and awake most of the night. When he woke he said he was fine. I tried getting him to swallow and I raised the head of his bed up. Last...
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    ALS & Drug Abuse

    I have the same problem My husband was DX with ALS in Jan. of 2004, prior to the DX he drank and abused RX drug when ever he got the chance. We divorced after 20 years because of his abuse and low and behold he got sober/ sort of. He had quit drinking. After 2 years of being off the booze he...
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    What can I expect?

    MTPOCKETS makes some great points. My husband has ALS and having people around is great but he tires so fast that he needs his quiet, Our grown children live about 4 hours away and I am grateful they are not living this everyday. We want them to visit often and pursue their happiness.
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    Phlegm And Trouble Swallowing.

    He refuses the tube, he has from the beginning. He has also had a 4x heart bypass and 2 heart attacks. before his diagnosed. He had his first heart attack at 39, bi-pass at 40 and another heart attack at 41 at 43 he was diagnosed with ALS. A year ago he went off all his heart meds and started...
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