Recent content by captaingary

2nd clinical trial as I understand it. 1st was stopped due to adverse reactions to the drug. It was promising so they redesigned it and are starting a second trial. Clinical researcher told me she has one person on for 8 weeks with no bad reactions. It is an 12 week trial. 450 people selected...

Thanks for the replies. I'll keep you posted as to progress (or lack of) as I go.

Hi All . Just a quick update and a question. All is OK with me for now. 8 months in and still standing, unsteady, but standing. Use a cane around the house for balance and a rollator for trips outside the house. Just gave up my driving privileges voluntarily. Can still drive OK but there is a...

Thanks for the info. Sorry it took so long to get back to you. Life gets in the way. Got to live it to the max while I have it

My personal experience seems to be rapid. Can't say for sure as it is all REALLY new. Noticed weakening in my legs and walk last Dec. Had to stop work in June (should have stopped 2 months sooner) could not climb steps. Went to a cane 2 weeks later. Ordered a walker yesterday. I can feel the...

Hi All. Very new to all this. Symptoms started about 7 months ago. After 4 Dr.s and 3 states they confirmed what I suspected from the beginning. ALS. Got to say it's harder on the people around me than it is me. Got a few questions. 1. What legal forms do I need to prepare while I still can...

I'm really new to this. Only diagnosed a month ago. Actually, never did get a FIRM yes it is ALS Because there is no definitive test for it. Moved to Florida 2 weeks ago from the Midwest. Supposed to be my retirement. Made an appointment with Mayo clinic in Jacksonville. Couldn't ask for better...