Merry Christmas and Happy New Year everyone!
I haven’t posted in a while so I’ll give a quick recap to people who don’t know/remember me. I was diagnosed in July 2013 and have gone through the many stages of progression: walking with a cane, walker/rollator, manual wheelchair, power...
Just wanted to let people know that a couple of weeks ago I was able to see the documentary Gleason, about former New Orleans Saint Steve Gleason, who was diagnosed with ALS about 5 years ago. I would highly recommend this film for PALS and CALS as it does a good job showing the struggles of...
Still here. A little over a month ago, I got a Microsoft Surface tablet and Tobii eye gaze system (on lease). I am still not adept enough with that system to type entire sentences with my eyes, so I still have to get someone to help me with posting. I also got a head array installed on my power...
I feel busy even though I’m not really doing anything. With all the visits from PSWs, nurses, doctors, volunteers, occasional friends, etc., it seems that something is happening everyday although I’m not really accomplishing anything.
Just came across this now-closed thread (https://www.alsforums.com/forum/general-discussion-about-als-mnd/11111-pbs-frontline-show.html) about PBS Frontline’s program about assisted death.
Unlike some of the people who posted on that thread, I was very comforted by that program. I am actually...
I purchased the RCA remote mentioned above. I believe the product is discontinued, so you may have to order it from Amazon or other resellers. Note: Some TV manufacturers (ex-LG) make a voice activated remote control, but it may only work with their brand of TV.
The remote control is a bit...
Film industry exec threatens legal action over ACC accessibility seats
Film industry exec threatens legal action over ACC accessibility seats | Toronto Star
I've had a similar experience to this guy while at the Air Canada Centre in Toronto. When watching a basketball game, if people sitting in...
Tell your husband to investigate the long-term disability benefits from his employer. He may find that he could actually make more money by NOT working, while still maintaining healthcare benefits, pension plan, etc. He will also have all that extra time to spend with you and the family. But he...