Recent content by canaz

I have not been diagnosed. Just looking to see early onset symptoms. Thx

Thank you, yes I was asking as an onset symptom sign. My Neuro today at Mayo has referred me to the Neuro Musclular unit at Mayo. I will be getting that appointment here shortly. Thank you

Nikki, I am going back to Mayo tomorrow to see my Neurologist to examine me for Bulbar symptoms. Since my EMG was only performed on the left legs/arm, I realize now that it would not catch that region. I have noted on some recent PALs posts referring to the neck/throat issues. Every day it is...

Hello, curious did you get your neck tested at the ALS clinic? I too have been experiencing much weakness there. I have clean EMG's on limbs but never tested the neck, etc.

Hello Nebrhahe53, I was reading a response to a post you gave in the fall of last year. I have had some concerns that I am working with a Neuro at Mayo in AZ. While I had had left side limb EMG a few weeks ago, plus a brain MRI, all were clear. I still twitch, but now much more so in the bulbar...

Hi, I was curious who the Neuro's you were seeing at Scottsadale Mayo? I am working with one now, but not certain he is listening to my onset concerns. I have read good things about Barrow. Sorry for the issues you are going through.

I have spent more time reading PALS onset symptoms, to include early onset bulbar that starts with breathing issues. While a very small % of the ALS Dx, I have read that twitching can be present first in these instances. In addition, difficult to speak long sentences and winded is also noted...

Thank you ECpara, sorry for what you and your family are going through.. I completely agree, and as Anxiety is new, I have yet to learn how to properly deal with it.

Thank you Nikki, noted. Atsugi, thank you for your note. The reason I am concerned about the bulbar onset is the unexplained reduction in nasal air wary, not sickness or uncontrolled allergies which even confused my asthma specialist. I understand those muscles are affected. When I couple...

Thank you for the reply Nikki, sorry to hear about you and your extensive family Dx. I am a newbie to this site, so I apologize for posting in the wrong area. BTW, what is a Sticky?

Hello, I would like to share my sympathies for all those dealing with ALS either as a patient, family member or caregiver(s) Looking back my concerns started about 7 months ago. I noticed a buzzing feeling in my head and body to an extent. It was coupled with a pronounced heart beat. About 4...