Recent content by califsand

I'm trying to find a new normal because so much of my life before ALS is gone now. I have a different job that pays way less so now that I have time to see it, I see that my finances are a disaster! I am a student and had taken time off last year so now am back full swing and taking 2 classes...

KeeKer, That is a great idea about the lights! Dad's hospice house where he lived has a fountain and when someone passes they ask the families to paint or color rocks to put in it. My neices & I did several and I placed them at the foot of the little waterfall. Dad loved rocks so this was a...

My father went through the same exact type of behavior and it was very difficult to continue to like him during that part of his illness. I think he finally became reliant on using a pen & paper after I broke down crying in frustration from not being able to understand him anymore and him being...

You're going through some hard things and your sibling is too. I learned how vastly different we all handle loss & grief during my recent experience. I too was worried about how a couple of people would be during the ceremony and after at the memorial. I actually told them ahead of time that I...

Sometimes ALS is hereditary but not always. It can't hurt to get a check up as Sharonca suggested and may set your mind at ease. Sometimes I get clumsier if I'm tired or not eating right... and as we get a little older we need more supplements. My coordination is not what it once was and if I'm...

mndireland... my dad was a difficult guy, cranky, moody, mean sometimes but then the other side of him was the most wonderful guy ever. We would be having a day where he was being a pain and I would be SO frustrated with him and then something stupid would happen, like I would drop something and...

Just got home from a day with my brother celebrating Dad. We went to the casino which was his all time favorite thing. Had a break with one brother showing up and the three of us had a few toasts to him with our sister on speaker phone, it was fun! I played Dad's favorite games and left with a...

I didn't write an obit or an "In memory of" for Dad... it seems that I was overwhelmed by everything going and and figured since I talked about it in the caregiver support group that I had said enough, or too much, as it was. Well... I was wrong so here goes... My father, Tom, was born on...

Sharonca, You should contact your local Hospice and ask them directly. My Dad only had a feeding tube and that made our options of where to move him to for end of life care a bit trickier. Hospice did take but I don't know about vents. If they don't then I cannot imagine what I would have done...

Hi Netty, I've been wondering where you have been but felt that with so many people lost lately that this may not be a place you wanted to be. You're in a place that so many of us know too well and in this forum, you're heard, loved and never alone. What you're saying isn't bad or wrong, it is...