Recent content by cajuntexusa

How do you know this?

I know its long but it is worth a listen to. Here is the email that I received from Dr. Lasala. Dear patients and Friends, TCA Cellular Therapy (TCA CT) is trying to obtain federal or state funding for its research protocols. So far our efforts to achieve this goal have been unsuccessful and...

We were told by the SS office that if you have ALS they will look at your claim first and foremost. When we submitted our paperwork, we received a call the same day. Keep after them.

I am very sorry to hear this. Please know that you need to talk, reach out. We are here for you.

My husband worked through the PVA to get approved. They have him at 80% - received back pay which helped alot. We are currently waiting for him to approved for 100%.

I'm glad your husband is okay.

Please when you have moment, look at this link. I have been in contact about ALS and stem cell research and I believe that these doctors are also ready for a cure. Charlie and I support their efforts. We are contacting everyone we know. Our next step is post this everywhere that we can to...

I am so sorry to hear about your father. I know how difficult this is for you. Please know that we are always here for you. I will say a prayer for you to give you strength during this time.

My husband has LT for the next five years. He also has life insurance which we don't pay for. It only covers a small amount. I tried to get life insurance for him with my company but they declined it. Wasn't asking for much. Hate the discrimination due to ALS.

Don't give up on your search. But do be careful and research the company thoroughly. There are facilities in the US that are doing stem cell extraction and are waiting for the FDA approval. Keep an open mind, do your research and ask the necessary hard questions. If they don't answer...

bipap issues When I was tested in June for the BiPap it felt good. When they brought me my own and placed it on, I felt there was something different, not enough air. I called the company and they assured me the settings were correct. This went on for several weeks with being able to wear it...

I do sincerley hope this works for her mom. This could be the breakthrough that we have been hoping and praying for. There is no need to be harsh to anyone willing to go to the extremes to educate us and share with us their experiences. I would like to know how her mother is doing after the...

I am so very sorry to hear about your mother. But... Go find a neurologist and get tested. You won't rest until you do.

Hello Ste, So very sorry that you are here with us. My husband was diagnosed back in March, 08. You will find helpful information here. if you have a question, just ask. We are here for you. Kind regards,

My husband left his job in March after being diagnosed. His FMLA ran out 7/1 and I picked him up on my insurance policy at work for BCBS. We work for the same company so it was not difficult. He applied for SSDI in March and it was approved a few weeks later as I contacted Sen Alexander's...