Hi, another cool day here in Western Washington...high today 68. I would love to see the sun & go outside. Hubby just redid our deck & fixed my pwc but in is lightly raining so stuck inside another day.
So sorry you have to be here..we all hate ALS. This site will be a wonderful resouce for any ? you can think of. Everyone here shares information, hints and we are always there to listen. Frankly, I get better answers to day to day challenges here than from my Doctor.
The weather here is beautiful. High today of 73 and low of 59 and no wind and yeah no rain. I hope all of you PALS & CALS have a good day. My very best friend is coming to see me this afternoon, can't wait.
Surprise it's cloudy & sprinkles in Western Washington again. Sitting here in my chair with a sweatshirt on.
Sorry Toto no changing of climates for me...I also have no air conditioning.
Hope you all have a good day & no one falls or runs over anything in their pwc.
Thanks for the support. Since I am on hospice medicare won't pay for cough assist machine but checking with MDA for one.
Kate, I agree please call the doctors office & put your name on the list 4 any cancellations. Kate I woulr love to chat anytime.
Toto..so glad 2 see a message from you...
Just want to vent...I am failing quickly. Just diagnosed 3-27-12 & can no longer walk, stand, situp, and very very little arm movement and now losing my voice. I'm on hospice care now (in my own home) & they have been great. I had a catheter put in and it has been good...saved me so much...
Shame on that man..$775 an hour. Please let your local ALS staff know about the ripoff & love love the idea of you turning into your local investigating tv station. I so glad you have such good friends to help.
Hi and welcome. This is a great place to be for support and information. My replies are usually short as it's hard to type. You have been thru so much at a young age but you will get better. You have a loving heart.