Recent content by CAHPAH

Thank each of you. It is good to see some of the familiar faces. I am sorry to see so many new ones. As extremely helpful as this sight has been, that is one reason why I had to stop coming...seemed like every time I logged on someone else had lost their battle with this horrible disease and...

Some of you may remember me, I use to post here some. After a six and one half year battle my wife passed quietly on to heaven yesterday afternoon. It was a peaceful moment, just the two of us, with my head on her chest as her heart beat it's last beat. An amazing women who fought ALS tooth and...

Just a Guy Just as a FYI. My wife has used the Trilogy 100 for almost two years now. It has a six hour battery and is realitivy light weight. It has allowed her great mobility. Just like your father, my wife chose not to have a vent and we where informed the the Trilogy might extend her life...

Dani Thanks for thinking of us. Things are going as well as they can, Serena still kicking (but that is all she is doing). Lost both my parents this summer, 5 weeks apart, both my girls moved out of the house so I lost some support there but we are managing well. Hope things are well with you...

So very sad to hear this news. God's speed Barry! We already miss you.

May the peace the passes understanding comfort you during this most difficult time. I am so very sorry for your great loss.

Deeply sorry for your loss.

Meg It was a tough desicion for my wife as well. The ALS doctors pushed for hospice for almost a year before she finally caved and then only because her FVC was down to 18% and she weighed in at 98 pounds. Tha was 14, going on 15, months ago. Her weight is up quite a bit (I'd post it but if she...

Dani Just wanted to let you know you are in my thoughts and prayers. I hope L is back a home in a very short time.

CJ My deepest simpathies. My thoughts and prayers are with you.

CJ, so very sorry. I can only image who difficult this must be. My thoughts and prayer are with you.

CJ Not much I can say. Just wanted you to know you are in my thoughts and prayers. I am so sorry you are going through this rough time.

Sixthkid I knew you would do fine. Good for you. Your dad is lucky to have you in his life.

Re: Sailing ans ASL? I live in the very middle of the USA, far away from any ocean, but I will say this; your PALS is lucky to have such a good friend. Not only will he enjoy the trip but just looking forward to it will, no doubt, bring him much happiness.

Sixthkid I understand your nervousness. It is difficult to watch someone struggle to clear phlegm when they don't have enough lung capacity to cough. I remeber the first time my wife assperated some liquid. It was very frightening. She told me afterward the thing that helped her most was my...