Recent content by Buckytm

I am not. My lung functions are not to a point that is necessary per the pulmonologist and neurologist. My O2 is always above 95 (or better) and I don't have any issues breathing. The only limitation is that I can't run at a brisk pace. I sincerely appreciate the responses. Mentally, I stay...

Previous thread I posted about a year ago. I have a paralyzed diaphragm. I have been to several neurologist and was assured I did not have ALS. My lung functions are static. They aren't any better but they aren't any worse. Last night I had a very disturbing event. I was sleeping and rolled...

Thank you Nikki. I certainly want to be respectful of everyone on here and what they are going through. I am just struggling wrapping my brain around all of these test, blood work, dr visit's etc...If I get more test and further medical information I will repost. You have been incredibly kind...

I am back with an update. I had an EMG, NCS, and Brain MRI. They all came back normal. The neurologist stated it was not ALS. I am so thankful, but admittedly, still concerned. What if everyone is wrong and its too early. I have never felt anything like this before. I literally have been...

Thank you for that. I would really like to continue to help in this cause. Do you have any suggestions on how to become more involved and what I can do to help. I understand the funding side. I have some associates that are Managing partners of some private equity and I want to help spread this...

As I have grown so emotionally connected to several people here and the reality of this terrible disease, I wanted to update everyone on my visit with the neurologist yesterday. First, he is well respected and came highly recommended from my PCP, my pulmonologist, and the neuro surgeon. He was...

Thank you. Ted and I were the same age and our career paths mirrored each other. In fact, he took over in Atlanta for me. I am seeing signs every where now. My right bicep, my right trap, my right thigh, my neck everywhere. I have actually gained about 3 lbs which I am told is a good sign, but I...

I am a 50 year old male. Until this past September I would have said I was in excellent shape for someone my age. I worked out 6 days a week, ate well, and took overall good care of myself. I started feeling like I had bronchitis and after a run could not catch my breath at all. I went to my...