Recent content by bucky

weak neck I am going through the same thing with my neck.Sitting at the computer or watching t.v. is no problem.But walking has become a challenge.My legs are fine.I just have to stop and kind of take a minute to get my head back in position.I was fitted for a neck brace and the store had to...

I have had a tube since March 5th. This is an excellent link.PALS helping PALS. Thanks

augmented speech I have Bulbar onset. I was not diagnosed until Feb. Prior to that it was diagnosed as Bulbar Palsey. My speech was gone by November of last year. I did a lot of research on the Internet. I found many augmented speech devices like Dynavox. The problem is they were expensive...

fiqures on A.L.S. My broter-in-law lives in a small community. Population is20,000. He informed me on his last visit that he knew of three people who have been diagnosed with A.L.S. in his community.Just this year. That certainly challenges the 1 in 100000 statement.

Ralph I am so sorry to hear about your husband. God Bless you and your family Bucky

cough assist Midwest Girl and Anne. All of the issues you have posted are a carbon copy of my problems. The excess saliva is a constant battle. My G.P. and Neuro have prescribed the following. Glycoprrloate 1 mg twice a day, Amitriptyline 10mg twice a day Oxybutin 5mg twice a day, scopolamine...

cough assist I have Bulbar onset A.L.S. Dx Feb 07 I use the cough assist and the suction machine. I use both daily. I use the cough assist in the morning and before bedtime. I follow up with the suction machine. There are times during the day on occasion when I use the cough assist. Sometimes...

http://www.simplifiedtraining.com/ Jimercat, When I got home I had some leakage or something nasty leaking around the wound. I take a 3"X3" gauze and put a antibiotic salve on it. I make Y cut in the middle of the gauze and place it under between the button and my skin. This solved the problem...

Hard decision I know. I had the peg put in on March 5th of this year. I was very apprehensive. I had lost thirty five pounds since the onset. Eating was an hour of choking and coughing so I didn't eat much. I have regained some weight. My energy level seems somewhat better. Its pretty easy to...

grampal lawn mowing basics Al, I thought your lawn mowing adventure was funny. Its nice to see some topics that can make us laugh and laugh I did. I thought it was so funny I shared it with my son on the other day. His responce is maybe I should take over mowing your yard. I am not sure if I am...

speech I have bulbar onset A.L.S. I began loosing my speech in Jan 06. I have no speech at all now and its been that since December 06. I cannot swallow and have a peg. As pointed out by someone else, I use E-triloquist on my lap top. I also purchased speaking dynamics. The Speaking Dynamics...

cough assist Hi, I just got a cough assist to. It seems to help with bringing up the secreation and definetly helps with keeping the air way open. I use it first thing in the morning when I get up. The cough assist machine and the suction machine certainly help make things somewhat more...

Thanks GrampAL I did enjoy the day. Your right about not being a teenager.LOL

excss saliva I have bulbar onset ALS and was diagnosed in Feb. It started with a speech problem in Jan,06 The excess saliva problem has been a problem for months. I use the scopoline patch and Glyocpyrrolate 1mg twice a day. I had an appointment with my neurologist the first week in May. He...

feeding tube What your experiencing pretty much mirrors what I have experienced. Hope this indicates the problem is just about over for you two and its healing okay. As I said in my last post, it seem to take more to time to heal than I anticipated.