Recent content by Brother Rock

The doctor I am working with currently who has said I do not have ALS and PLS is Dr. Pascuzzi. He is the ALS and PLS expert for IU Hospital Neurology clinic in Indinapolis IN. He is suppose to be well known in the ALS community.

I will keep in touch as what I may have may be what someone on this sight has. That is if we do find out what "it" is that I have. Thank you

I do not have the "normal" PLS and ALS symptoms according to this ALS expert. I do have symptoms of a disease of the spinal cord. My symptoms mimic someone having stenosis in the cervical area of the neck. I had convinced myself I did not have PLS when I read all the poor souls on this site...

I have had my second opinion and my new doctor says I do not have ALS or PLS. He said I may have a very rare genetic disorder or disease that is hard to detect so it could be a while before something is possibly known. The plan is as follows. I had more blood taken for more test. If these...

Thank you for your response deliagarcia1. Sincerely Brother Rock

Thank you WillyB, I am slowly losing my "faith" that I have PLS because I see what others are going through and I do not even come close. I have gone to see another doctor to get a second opinion. He said I match ALS more than I do PLS because I am only affected by weakness in my right leg...

I can do ALL THINGS through Christ who strengthens me Nancy. Here is my latest update from an e-mail I sent to my relatives. When I last talk with my new doctor he said that after reading through my documentation and looking at the MRIs he could not find anything that would be causing me my...

I got this in an e-mail The recording of the ALS Association/ NEALS PALS Webinar: Upper Motor Neuron Disease Research presented on July 2nd by Hiroshi Mitsumoto, MD and Nazem Atassi, MD, MMSc can now be viewed on the NEALS website. To view the webinar please go here. ALS Clinical Trials | ALS...

I met my new doctor Friday. He is a character and I liked him. He is also very knowledgeable in upper and lower motor neuron issues (ALS and PLS). I prepared a package of information for him that contained the history of my problems since 2007, copies of the reports on my MRIs, EMGs and such...

Sorry LouLou but from what I have read and seen PLS and ALS attack all voluntary muscle groups. I believe you are experiencing the next phase of your disease. I will put you in my prayer list if you want me to. Brother Rock

Hello all. I met my new doctor Friday. He is a character and I like him. He is also very knowledgeable in upper and lower motor neuron issues. I prepared a brochure for him that contained the history of my problems since 2007, copies of the reports on MRIs, EMGs and such, and also results...

I do not know how anyone can go through PLS without the Lord. I firmly believe that if I have PLS I can handle it because God tells me in Philippians 4:13 that "I can do all things through Christ which strengtheneth me." Sincerely Brother Rock

Let see, AFO, is that an Air Force Officer? No wait, a Advanced Flying Object? Errrr, that can not be it. How about Assisted Falling Object? Well darn, I guess I have not real idea what a AFO is afterall! :-)

Thank you for your kinds words Nancy. I believe it took most of a year before she was finally diagnosed with ALS. I saw her on during the day she passed away and know in my heart she was going to me the Lord very soon. I got the call late that night about here passing away. They asked for...

Hello Nancy, Thank you for responding. My sister was diagnosed with ALS and died less than three years later. ALS and PLS affect people so many different ways. I did talk with the doctor's assistant an my appointment is confirmed. So starting the 29th I will be waiting for another diagnoses...