Recent content by BReilly2

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    Tips for continuing use of e-reader

    My sister loves to read. It is her one pleasure. Slowly but surely, the ALS progression is robbing her of this joy. Although she is somewhat of a techno-phone, we have introduced her to the Kindle e-reader. Her continuing loss of the ability to use her hands is threatening her ability to...
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    Resisting use of meds for pain control

    Thank you so much for sharing.
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    Resisting use of meds for pain control

    Good advice. Thank you, Vincent.
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    Resisting use of meds for pain control

    Thank you! That was so helpful.
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    Resisting use of meds for pain control

    Great suggestions. Thank you, Karen!
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    Pain relief for pressure points

    Thank you so much, Laurie
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    Resisting use of meds for pain control

    My sister, who is herself a physician (pediatrician) fights any suggestion for using any meds stronger than Advil or Tylenol. Obviously we don't want to push drug use unnecessarily but she seems abnormally resistant to using anything else. Her daughter (caregiver) is suffering from her sleep...
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    Pain relief for pressure points

    She does via her feeding tube at night. But she will only take the most minimal dose and is extremely resistant to taking meds for relief on any kind. I was not aware of a topical option though. Thank you for that hint!
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    Pain relief for pressure points

    I joined this forum so I could be a support for my niece, who is caring for my sister with ALS. I received this request today and am hoping someone has insight to share. Thank you, in advance! "A few days ago, one of her aides identified a possible emerging pressure sore on her sacrum area...
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    Bed Railings

    My sister just purchased a Right Flexabed but misses the handles (railings) she was able to use with her regular bed. Has anyone heard of a free-standing, over-the-bed device or any other option for use when attached side rails are not? Thank you
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    Researching bidet options

    Am renovating bathroom to accommodate toileting for female ALS sister's needs. This includes a new toilet. Looking for product recommendations. Want the best so as not to have to upgrade. Any experience to guide my choices would be MUCH appreciated. Thank you. PS: new to this site and...
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