Recent content by brayden722

Thanks for replying. I didn't notice it until now. Sorry. I am on effexor for my severe depression. It is a mood stabilizer. I am on baclofen for my HSP. I don't understand how you had spasms and twitching related to anxiety. Did they explain that to you? Hope I am not being too personal

Hello Any updates?

Mary, so sorry for your loss. I was reading your entries and it reminded me of when my mom was battling cancer. We lost her when I was 20. If you ever need someone to talk to, please feel free to contact me any time.

Just sent you a message. See if you received it

Yes, I know you are. Been there. Sign up on the site and we can pm on there if you want.

Sir??? Haha Yes, there is. A variety. If you haven't already, check it out.

Hi Jai, have you checked the site patientslikeme?

Hi Deb, I have HSP but have the pump. I had 2 trials before deciding to go with the pump. In my case, the trial injection was much better than the spinal tap :) All I can say is that I am very happy I had the pump implanted (twice lol). I am not looking to the future. Just very fortunate I...

Hi Deb, I had the same concerns as you are expressing. I was taking a high dose of oral baclofen and 3 other sleeping aids and muscle relaxers to get some sleep at night. Actually, I don't even know the pump is in me most times, especially when I am sleeping. At first you are very conscious...

Hi everyone. I don't post on here much but I thought I would give my two cents worth about my pump experience. I went thru 2 trials for the pump. Both trials had me as a candidate for the pump. I, too, was on oral baclofen and two other muscle relaxers to take at night for sleep. I was...

Thanks for your response LouLou. Not much comfort when you have to explain to the people taking care of you what a pump is and the disease that you have :) I had early symptom signs such as double vision, dizziness, feeling a being in lala land but that is normal for me so I didn't really...

Hi everyone, just came back from a lovely 2 and a half week vacation from the hospital (going to fire my travel agent lol) My baclofen pump catheter kinked or the pump malfunctioned and I went through severe withdrawal symptoms. The pump's alarm only went off once a day and it was so low it...

Hi Jennifer Just seeing if you are still around and have any further questions. Many of these members focus on ALS solely but it can be a multitude of problems. I know this first hand and like to reach out to members that may have questions. One thing is for certain....fear of the unknown is...

Hi Courtney, Thanks for accepting my friend request. Hope verything is going well with you. I went thru 7 years of being undiagnosed so I know what you are going thru now. If you need someone to talk to or have any questions, feel free to contact me any time. Take care. Craig

Mike, my area of concern is basically in my legs, hips, and lower back. The pump has done wonders thus far even though I had it implanted only about 6 months ago. I am able to get up from seated positions much easier and my gait is much better. The side effects of taking 7 muscle relaxers at...