Recent content by BrandonAZ

One more thing to note to note, is I've been trying to keep at my PT exercises, but my left shoulder has been progressively getting weaker during exercises, along with the atrophy I mentioned (trap area / deltoid). It's been slow, but a definite progression in both atrophy and strength specific...

I was referred to an endocrinologist who did additional blood work, and said everything was normal - couldn't see anything that would be causing my symptoms. They kind of gave me an attitude on why I was even there :/

I had my EMG today (performed by the neuromuscular specialist). He noted fasciculations obviously, but said no nerve damage in lower left limb. One concerning part was the needling of my thoracic paraspinals, I kept hearing the fast tapping noise and he kept telling me to relax the muscles, even...

Saw a neuromuscular specialist today, EMG setup for next week. Based on clinical and history, he's leaning towards CFS instead of a MND, but the EMG will help hone in on his initial take. He did say we'll likely test for a voltage (something or other) antibody after EMG results, and possibly...

Im able to get in sooner (later next week) with the specialist. I've been doing better in trying to be somewhat distracted (and humor certainly helps, thanks Clearwater AL). The twitching / cramping is getting even more severe, looking like a bag of worms in my calves along with the cramping...

Well, end of August is the soonest the specialist is able to get me in due to summer vacations. This should give me some time to focus on other things, but the constant twitching / cramping make it so hard!

Quick follow-up: Went to neurologist today, who decided not to do an EMG. Instead, he's referring me to a neuromuscular specialist to perform the EMG and evaluate / dx. One thing to note, I've had left trap / sternomastoid atrophy and weakness progress over the past year (accessory nerve...

Hi All - Longtime lurker (seems the norm around this forum though, right?). 35 / M / Married with two young boys, 1 and 5. I wanted to start off with my prayers to those of you who are or have been impacted by this disease, and commend the strong community shown in these forums! Always been...