Here goes about a year ago was giving als diagnosed by northwestern hospital in Chicago by neurologist department not much progression ran a few more test spinal bulged atrophy aka Kennedy disease not much better just curious they made it seem like no big deal have anyone ever heard of this...
Sorry Greg didn't know I had to hold a special title to give information just sense it seems like everyone progresses differently but now I see it a pick and choose forum I always figured the more information the better
An official diagnosis came 2 Monday ago I guess my story begins in October 2012 when I woke up with body wide twitching and a burning sensation threw out my body I was sick with flu like symptoms right before that like everyone else went to doctor google so scared myself with als months went...
These symptoms are identical to what I went through in January 2012 I don't know if the got better as I still get all these feelings but still found nothing a bunch of blood test clean emg I still talk and walk still can work doesn't know if it helps like you I thought ALS I wish I never read...
Yes the neurological specialist said no the original nuero I saw said she thought so do sent me to see a special ist at northwestern and that was because of bodywide fascilations and something she said about my reflexes
Sorry I did back in 2012 the said benign the reason I going Monday is I raspy voice for a month no improvement so my doctor set up this appointment because he finds nothing wrong in my thoart he believes neurological
Thanks Nikki and Atsugi my wife called are to doc who made an appointment with north western hospital in Chicago he also believes I was diagnosed wrong be over three year and I can still do construction the appointment August 24 I will keep you posted here's to hoping
Hi I was diagnosed in January 2012 I had an mri and a nvc/emt I had body wide facsulations and fatigue sense then i have lost nothing no muscle wasting no loss of strength now about a month ago I get a burning sensation threw out my body I hear a lot of people talk about Cleveland for diagnosing...