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  • Still fighting for PLS/ALS claim. Going on 16 months now. I need to hear from anyone who has been approved for PLS and to see how it was worded. I would love a copy of someone's award letter and what office granted the claim. My paperwork is all over the map - predominantly upper motor neuron als, PLS/Lou Gehrigs disease. I definitely do not have classical but a variant there of.
    Please help - I am in desperate need of help. Just a couple people who have been successful would be of grat benefit here.
    What wonderful news about the VA If you got it apply for everything ASAP. It takes a while to get the ball rolling, but once you do it is wonderful. We applied for the life insurance in november, finally got it last week. If you need any questions answered, ask away. Again CONGRATULATIONS, this whole thing sucks, but once you are in, it is such a relief to not be so stressed about the financial aspects. HUGS Lori
    Like to stay in touch as it appears our cases are almost identical and from the same hospital. Johns Hopkins. Was the letter you had generic or specific to your case. Dr. Jose Lopez is my Dr over at Johns Hopkins.
    Regards
    Dave 302-226-2634
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