Recent content by bowser

What in the world is the reason for a painful/uncomfortable test when the patient has already chosen to NOT use any extra equipment to keep her alive ? Why not respect the lady's wishes ?

Hospice will help manage pain

I'm certainly not a part of any " little tight group" but when college students come and say.........."tell me about your ALS experience"..........I get the feeling they are too LAZY to read the HUNDREDS of posts where nearly every poster HAS ALREADY bared their soul and stated their...

My wife never slept a wink in the daytime while confined to a wheelchair. Now that she is bedridden 24/7 , she sleeps a lot in the daytime.

Perhaps newly diagnosed ALS people will realize that saying............" I will have a PEG installed, but not now. I will do it when I need it "..................has consequences and might prevent you from doing so.

I would recommend a hospital bed for anyone with ALS

and not for people who do physical work. I felt sorry for the Vietnamese man ( about 60) who just got diagnosed with ALS and attended our support group meeting. He barely spoke English and worked at a big factory on the assembly line. The day he could not pull the clusters of electrical wires...

if you went from start to FINISH it would be impossible for you to post

When you are paralyzed and bedridden 24/7 and have a spouse changing your diaper, come back and we'll talk.

Yes, I feel I am more qualified to speak as someone who has witnessed all the stages of ALS vs someone newly diagnosed comparing you to my wife........... As you are she was As she is, you will be.

I can't speak for the other caregivers, but in my case I post as if I am the person with ALS because I have been by my wife's side every step of the way. From her frustration with slight speech difficulty, to diagnose , to her using an ipad, feeding peg, seeing her turn colors as she laid on...

My wife is totally paralyzed from ALS yet I got a call one night (9pm) from a woman I don't even know well. She stated her daughter told her coconut oil would not only prevent my wife from dying but reverse the disease so she was better than the day diagnosed. My FORMER chiropractir inquired...

I sure hope it helps. An ALS spouse/caregiver ( on a different forum) was very hopeful when her husband decided to go on Ritulek.( sp ) She now says she doubts it is helping at all. We can only hope help is ...........just one study away.

You are lucky. Most of the places I work suddenly have no use for anyone who develops an illness/ disease that limits their ability to perform.

The last time we were able to travel back to Minnesota..............May of 2012........we went to the ALS clinic in Minneapolis knowing it would be the last time as travelling was coming to an end. The ALS neurologist was great and we ( her family) pressed him for an opinion. He kept...