Recent content by bone33

just an update from yesterday's neuro visit... it was the first after having seen the MND specialist who said BFS in Sept while having received the worse diagnose before in July. He noted the heavily remaining discrepancy between those two positions after reading thru the MND specialists...

Thanks for your comment and words of hope. I understand and my local neuro as well that he cannot do any gene analytics but he said he could trigger that with some specialized clinics. Getting the docs talk about the emg results would not work as the 'BFS guy' clearly didnt care about the EMG...

Well indeed it is a bit odd... the presentation of whatever it is remains probably not 'textbook classic' so that a slight hope remains... Both clinics were rather reputable ones imo: 1) the MND suspecting one: a neurological policlinic as part of a huge...

Hi everybody, It took me a several months till I decided to post and apologies that it got right away quite a long one... Just to briefly introduce myself I am now 30 and w/o any family history of neurological issues. “Past” presentation of: fit, sporty with a stressful and demanding job (so...