Bobsgirl - I came across that they are suggesting Hospice. Went to a support group meeting last night and just heard some info. I don't know how New York works, but in Michigan I have heard from my group support meetings that you need to get your pwc (power wheel chair) before hospice comes in. It has something to do with Medicare paying for it before and not after hospice. Perhaps you can check with your doctor or ALS clinic about this before you contact hospice. Or maybe hospice can tell you when you do speak with them. Good luck. This is all so overwhelming at times.