Blythe40

Blythe, today you wrote a Visitor Message to yourself. It's unlikely anyone will see it here. I suggest writing on the forum or in your blog.

Hello - My mom has been living with ALS for almost 8 years now. I have been her caregiver for the past 3 years since she started to have issues taking care of herself without help. My mom is at the stage where she is stuck in bed unable to sit up on her own and has a feeding tube. She is constant care throughout the day and sometimes at night. Every day there is a new challenge and not always answers to help me. I am here to gain insight and possibly assist other since we have been dealing with ALS for many years now.