Recent content by BlueSkies21

Foodie, thank you I will see if I can get in touch with them. Igelb, yeah my PCPs and Neuros have all expressed that I should see a neuromuscular specialist. I do have an appointment with a specialist in Denver, months from now (the wait time to see them has been unbelievable). My concern is...

Alright I'm back needing more advice. I applied to the Mayo Clinic, and immediately got denied. I called and asked if there was any more information on the reasoning for that decision, or a way to appeal. No to both. Wont give me a reason, wont let me appeal it. Went back to my GP and told him...

Igelb, I forgot my profile showed me in CA. That was just a generic answer I put in when I signed up for the forum. I honestly didn't expect to be here long enough for it to matter. I actually live in CO. And every doctor I've had experience with so far doesnt seem to know what's going on, and...

Hello, I'm back with an update and asking for some advice. Since the last time I was here, I took your previous advice and saw an internist. Unfortunately she agrees that this appears to be neurological. I saw my current neurologist again, and she basically told me she has no idea what's going...

After speaking to my PCP, we decided it is time to see another neuro, since the "Let's wait and watch it get worse" approach is getting old. The weakness has now spread to pretty much every part of my body. I recently noticed that even my quads and thighs are weak, and they are now trembling...

Hello again, wanted to post an update. Everything has continued to progress downhill. In the time since my last post (about 6 weeks ago): -My left leg, which was almost unaffected, began twitching and squeezing just like the right one. Both legs now feel very stiff 24/7 and feel equally bad...

Igelb, no I've just been evaluated by a neurologist in the area. I've also briefly spoken to their neuro-muscular specialist, as he did my EMG. Maybe I should get the opinion of another from a different practice? And as for the twitching and weakness...my arm is getting weak in a way that is...

Nikki, thanks for the advice. I had a follow up with the neurologist this week. In the physical, she could not find clinical weakness at this time. She did recommend a new brain MRI since my last one was about six months ago, so I guess I will see what that brings. It's very frustrating that no...

Sorry to bump this, but does anyone have any thoughts on my story? I wasnt even concerned with ALS until I realized that the spots that had focused twitching are the spots in which my muscles are getting noticeably weak. I am now very concerned about it. Any help is appreciated. Thank you

Hello all. I'm a 30YM in the US. I have been experiencing troubling symptoms for about 5 months now, and I never wanted to make a thread here, but I'm about at the end of my rope trying to figure this out. I apologize for the long thread, but I've spent alot of time gathering as much information...